My prostatitis story

Tetalk

New member
Joined
Jan 17, 2016
Hi sparky - in terms of original symptoms did you have issues sitting , burning pain etc... Basically pudendal neuralgia? I've just started pelvic floor therapy and it's pretty painful ... But assume worth it ? How long before u saw any positive results from it?
 

Tetalk

New member
Joined
Jan 17, 2016
Hi sparky - in terms of original symptoms did you have issues sitting , burning pain etc... Basically pudendal neuralgia? I've just started pelvic floor therapy and it's pretty painful ... But assume worth it ? How long before u saw any positive results from it?
How is everyone doing? I see this thread has reached almost 100 pages and simply do not have the time to go back and read much. I apologize greatly for not being around here for nearly a year, but life has gone on and I must say you really do push this aside once you have reached a point where you are "cured" in your mind. I use the word "cured" very cautiously as I truly believe that the definition of a cure is unique to each and every one of us. This is because I believe what is being discussed on this forum, as well as hundreds of others all around the world, is actually a combination of many different "ailments" ranging from true bacterial prostatitis to muscular injuries. I do not like the word disease, and refuse to use it to describe this as more times than not diseases are not curable, whereas this is. Unfortunately, modern day medicine is not practiced by the most compassionate of people, as I'm sure we have all encountered careless doctors along our journeys. But there are many wonderful people out there that are willing to help, and are open-minded. I myself have been through the whole 9 yards with this mystery pain, and I too was at rock bottom, hopeless and without belief that I would ever reach a point where I was beyond this. I was wrong. It's as simple as that. This is most definitely beatable. Like I said, this whole umbrella term dubbed "prostatitis" is really just that. It is an umbrella term used to describe many different causes of pelvic pain.

I would bet my last breath that my symptoms were due to muscular tension and pudendal nerve neuropathy (not even entrapment as I once believed) from long distance cycling and heavy weight lifting such as squatting. If I had not drove myself insane with searching the internet and reading all the horror stories, I may have figured this out sooner. I too have had all the tests, all the antibiotics, all the "treatments". Some stuff did help, such as pelvic floor therapy and active release massage/myofascial release from a sports doctor. But taking time off from these activities, and time, are what helped the most. Time has completely healed me. I mean this in the most non-cliche way possible. Taking a break from the problematic activities and allowing my body to do what it needed to do to heal is what cured me. Now this may be different for all of you whether your situation is bacterial or muscular or whatever. But my point is, for one second, take a break from all the poking and prodding of your body, taking countless bacterial tests, ingesting countless pills/medications/supplements, and from stressing to all hell about this, and really assess your life up to the onset of symptoms. Being a highly, highly, potentially over-motivated individual, I thought I was just going above and beyond with the amount of physical exertion and exercise I was doing, when in reality, it was a long time of buildup, until I eventually broke down and the symptoms started.

It's been almost 3 years now since my symptoms began (if I remember correctly, I honestly cannot even remember anymore as I barely think about this anymore). I am back to my normal life. Lifting weights and running (more cautiously of course). I am back to school, back to work, back to pursuing goals and dreams. I say this not to brag to anyone here, but to inspire. I want you all to seriously assess your situations individually. Stop trying fit square pegs into round holes. If this ailment was that uniform, the doctors would be able to help you much more than they can.

I am not a doctor, but I am very knowledgeable of this entire situation due to months and months of self-education on medications, musculature, symptoms, etc. So please feel free to message me with questions or post them here and I will do my best to help all of you as much as I can. I cannot promise that I will frequent these boards as much as I used to, but I will make an attempt to check in here at least once a week, if not a few times. Many people here inspired me along my journey, such as Iwillbecured and a few others. These guys were very knowledgeable and inspiring when I too was just starting out with this and I'd like to say thank you to them for all of that.

Sorry for the rant, but do not give up hope! That's my message to you guys through this whole book I just typed, haha.

- Sparky out.
 

T.R.

New member
Joined
Feb 16, 2011
For those of us with chlamydia caused prostatis...wondering how many of u have noticed memory has become much worse? Found this article I wanted to share which says that Alzheimers can be caused by it..we need antimicrobial trials!

http://www.telegraph.co.uk/news/science/science-news/12188092/Alzheimers-disease-could-be-caused-by-herpes-virus-warn-experts.html

Alzheimer’s disease could be caused by viruses like herpes, a group of renowned dementia experts have warned, as they call for urgent investigation into the link.

The worldwide team of 31 senior scientists and clinicians, which include specialists from Oxford, Cambridge, Edinburgh and Manchester Universities and Imperial College, have written an editorial which suggests that microbes are the major cause of dementia.

The herpes virus - the type which causes cold sores - and chlamydia bacteria are named as the major culprits, as well as a type of corkscrew-shaped bacteria called spirochaete.

.tg-pullquote__global__group { }.tg-pullquote__global__group::before, .tg-pullquote__global__group::after { content: ""; display: table; }.tg-pullquote__global__group::after { clear: both; }.tg-pullquote__inline { float: left; }.tmg-particle.pull-quote { margin: 0px 20px 10px 0px; width: 260px; float: left; }.tg-pullquote_container { font-size: 18px; line-height: 23px; font-family: georgia; }.tg-pullquote__title { font-family: arial; font-weight: bold; font-size: 16px; border-top: 1px dotted rgb(0, 0, 0); }.tg-pullquote__quote { color: rgb(0, 122, 143); font-style: italic; margin-top: 5px; margin-bottom: 5px; }.tg-pullquote__attribution { color: rgb(120, 120, 120); margin-bottom: 5px; }.tg-pullquote__source { }.tg-pullquote__source__link { color: rgb(35, 75, 123); outline: 0px none; text-decoration: none; }.tg-pullquote__source__link:hover { border-bottom: 1px dotted rgb(18, 40, 66); color: rgb(18, 40, 66); } “There is incontrovertible evidence that Alzheimer’s Disease has a dormant microbial component. We can’t keep ignoring all of the evidence”
Professor Douglas Kell, Manchester University

Currently most scientists are trying to find treatments which prevent the build of sticky amyloid plaques and misfolded tau proteins in the brain which prevent neurons from communicating with each other, leading to memory loss and cognitive decline.

But in an the editorial in the Journal of Alzheimer’s Disease, it is suggested that it is a viral or bacterial infection which triggers the plaque build-up in the first place. Targeting them specifically with antimicrobial drugs could halt dementia.
Professor Douglas Kell of the University of Manchester’s School of Chemistry, said “We are saying there is incontrovertible evidence that Alzheimer’s Disease has a dormant microbial component. We can’t keep ignoring all of the evidence.”
There are currently 850,000 people living with dementia in Britain which is due to rise to one million by 2025 and two million by 2050. But despite 412 drugs trials taking place between 2002 and 2012, nothing has been shown to combat the disease.
The authors say that viruses and bacteria are common in the brains of elderly people, and although they are usually dormant, they can ‘wake up’ after stress or if the immune system is compromised. Around two thirds of people will acquire the herpes virus at some point in their lives, and many will not realise they have it.
The herpes virus implicated in Alzheimer's is also associated with cold sores Photo: ALAMY
The herpes virus in particular is known to damage the central nervous system, and the limbic system in the brain which regulates mood and instinct and is associated with mental decline and personality changes.
They also point to the fact that a gene mutation - APOEe4 - which makes one in five people more susceptible to Alzheimer’s disease, also raises their susceptibility to infectious disease. Viral infections in the brain are already known to cause symptoms similar to Alzheimer’s and the experts say the link has been ‘neglected’ for too long.
“Alzheimer’s disease causes great emotional and physical harm to sufferers and their carers as well as having enormously damaging economic consequences,” they write.
“We write to express our concern that one particular aspect of the disease has been neglected, even though treatment based on it might slow or arrest Alzheimer’s disease progression.
“We refer to the many studies, mainly on humans, implicating specific microbes in the elderly brain, notably herpes simplex virus type 1, chlamydia pneumoniae and several types of spirochatete.
“We propose that further research on the role of infectious agents in Alzheimer’s disease causation, including prospective trials of antimicrobial therapy, is now justified.”
They say new findings could also have implications for the future treatment of Parkinson’s Disease, and other progressive neurological conditions.
Alzheimer's disease could be caused by a virus
Professor Resia Pretorius of the University of Pretoria, who worked with Prof Kell on the editorial, said “The microbial presence in blood may also play a fundamental role as causative agent of systemic inflammation, which is a characteristic of Alzheimer’s disease.
“Furthermore, there is ample evidence that this can cause neuroinflammation and plaque formation.”
Dementia charities said they had noticed that viruses and bacteria were more common in people with Alzheimer's disease.
Dr James Pickett, Head of Research at Alzheimer’s Society said: “A large number of different microbes including viruses, bacteria and fungi have been found in the brains of older people - but there do appear to be more of them in the brains of people who have died with Alzheimer’s disease.
"While these observations are interesting and warrant further research, there is currently insufficient evidence to tell us that microbes are responsible for causing Alzheimer’s disease in the vast majority of cases. We would like to reassure people that there remains no convincing evidence that Alzheimer’s disease is contagious or can be passed from person to person like a virus.
“Given the enormous global impact of dementia, there is intense interest from the research community to understand all the potential contributing factors. We welcome research that explores all possible avenues and have committed £100 million over the next decade to more fully understand the causes of dementia and to improve diagnosis, treatment and prevention of the condition.”
Last year, researchers found that the 'seeds' of Alzheimer's could be passed through blood transfusions and medical accidents.
Prof John Hardy, Professor of Neuroscience, UCL, said: “This is a minority view in Alzheimer research. There had been no convincing proof of infections causing Alzheimer disease. We need always to keep an open mind but this editorial does not reflect what most researchers think about Alzheimer disease.”
Dr Simon Ridley, Director of Research at Alzheimer’s Research UK, said: “There is growing evidence for the role of the immune system in Alzheimer’s and active ongoing research looking at how an inflammatory response might contribute to the disease. There is some evidence to suggest that infections in general could ramp up the immune system and contribute to the progression of Alzheimer’s, but there isn’t conclusive evidence to suggest that a particular infectious agent or microbe could be directly responsible for causing the disease.
"There are many avenues being explored to understand the initial events that trigger the development of Alzheimer’s and this is an important part of the research process for ruling in and out particular hypotheses. There is no evidence that Alzheimer’s can be passed from person to person like a virus. Continued research funding into diseases like Alzheimer’s is important to build a clearer picture of the genetic and lifestyle risk factors for the disease and use this knowledge to develop preventions or treatments.”
 

bringthemon

New member
Joined
May 14, 2016
Hello. I will tell you my chlamydia caused prostatitis story and how I cured it or maybe I'm close to curing it... anyway, even if I'm not cured it may help someone else. Now it is almost 3 months since I stopped antibiotics and i'm still negative for chlamydia.

It took me 2 years. I went thru multiple one month long therapies with all standard antibiotics for chlamydia (mainly macrolides and tetracyclines). They reduced the symptoms enough for me to ignore them, but I still had symptoms and was still positive for chlamydia. The antibiotics did not brought any further relieve... it was like popping Tik-Tak. Then I did a thorough research and found that one of the most powerful antibiotics against chlamydia (and with excellent tissue penetration!) is rifampin. The catch? Well, chlamydia rapidly develops resistance to it and it fell out of favor...

In recent times, however, they found that when rifampin is taken with macrolide or tetracycline chlamydia does not develop resistance and the synergistic effect makes one powerful weapon against it. That was my hope.

I started one month therapy on azythormycin (beware, this antibiotic has long half life and should not be taken everyday!) and rifampin and my remaining symptoms started disappearing during the second week! I was peeing like a horse! One month after the therapy I was negative! And after another month I was positive again... but symptom free at last.

Then I started second one month therapy but used clarithormycin instead of azythomycin. Clarithromycin is newer macrolide and has the advantage to be taken every day (which is convenient for longer therapies). Supposedly it also has a bit better activity against chlamydia than azythormycin. So, I was negative again a month after the therapy... and then again positive!

Now I was really in despair and decided to poison myself with two month therapy on doxycyline and rifampin. And here I'm almost 3 months after the therapy and still negative and symptom free!

I don't think that doxy is better than clari. I think that the factors that helped me are the longer period on drugs and the use of two drugs. Actually I think that clarithromycin could do better job than doxy in this case. I never tried two months single drug therapy so I don't know if that would work...

I did this under monitoring of my uro. Don't do this without a medical advisory! Rifampin, especially when taken with other antibiotics, could melt your liver! Tetracycliens are bad for the stomach... and macrolides could bring you a heart attack! (but probably still less toxic than doxy).

I also advise you against prostate injections. It is outright quackery. It is probable that you will make your situation worse that way.

Also beware that frequent popping of antibiotics has many side effects. Like, for example, I was getting really annoying urethritis almost every time when I was on antibiotics (because they mess your normal urethral flora). I got staph. aureus, I got staph. epidermidis, I got enterococcus... Fine way to make your situation worse...

And one note on proper testing for chlamydia. Do PCR tests, please, All other tests could give false positives or false negatives. PCR is the most sensitive and can't give you false positive (well, technically it can, because it is so sensitive that it could detected chlamydial DNA a month after you killed it). The probability for false negative is also much lower. All you have to do is to collect 30-40ml of first catch urine in the morning and bring it to the lab. No swabs, no nothing... Being paranoid, I do all kinds of tests in different labs.

Here is the study that helped me to come up with this therapy:

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2907099/

Bye.
 

HarryCrumb

New member
Joined
May 17, 2011
After about 7 years I've learned to avoid caffeine, I don't drink diet sodas either they contain aspartame and lock me up where I cannot urinate for hours. Only soda I will touch is sprite. I also avoid red colored drinks, red Gatorade makes me urinate every 30 mins. no problem with any other non-red color though.

Orgasm with a woman is normal, but by myself masturbating nothing their at all.

I feel stupid for wasting all the money I did on doctors, doctors do not have an answer to this problem, in fact many doctors hang their head low as protatitis when confronted with these patients, they are the patients that doctors do not want to treat or mess with, urologists refer to prostate suffers as "problem patients".

I once messaged a urologist that I used to see on facebook that retired 1 year earlier, and was asking him how retirement was. He said retirement was good and he was glad to be out of the urology business, he told me that the reason he retired was because of men with Chronic protatitis, he also said that many times he thought of hanging a sign on his door that said "If you suffer from Chronic Prostatitis please seek help elsewhere"

So people need to understand this before you end up thousands of dollars in debt, there is nothing they can do for you, if your family doctor has failed to cure your prostate condition with 2 weeks of antibiotics, then there is nothing the urologist can do, he can check your prostate and tell you if it's swollen or not like your family doctor, he can have you piss inside of a machine that looks like a small toilet and charge you $1800 and tell you that your urine flow is normal or slow (which you already knew so that machine is pointless), he can massage your prostate and catch the fluid and put it on a slide and tell you he believes their is an infection because of all the white blood cells in it and prescribe more antibiotics that don't work and then the next time he massages your prostate all of the white blood cells are gone and then he claims it is now all in your head and that you were cured with those antibiotics that he prescribed the last time even though it did nothing for your symptoms because he states your symptoms are all in your head.

Anyways, thought I'd type this for somebody who is ready to go in debt and and spend money he can't afford to pay for an expensive doctor that A. can not possible cure you B. and doesn't want to treat you in the first place. Though most of us who have suffered for over several or more years already know to avoid the doctors.

About all you can do is make lifestyle adjustments, or try some of that pelvic stretching stuff. Some people have had luck with physical therapists doing trigger point and pelvic massages and what not, maybe if you are bent on spending lots of money best to avoid the urologist altogether and try one of those guys instead.
 

Jaumeb

New member
Joined
Jul 7, 2016
My hope is that this can be fixed with diet. I am interested in the ideas of the Weston A. Price Foundation. I liked that web knowthecause that some mentioned in this thread before.
 

VB1988

New member
Joined
Jul 19, 2016
Hello. I will tell you my chlamydia caused prostatitis story and how I cured it or maybe I'm close to curing it... anyway, even if I'm not cured it may help someone else. Now it is almost 3 months since I stopped antibiotics and i'm still negative for chlamydia.

It took me 2 years. I went thru multiple one month long therapies with all standard antibiotics for chlamydia (mainly macrolides and tetracyclines). They reduced the symptoms enough for me to ignore them, but I still had symptoms and was still positive for chlamydia. The antibiotics did not brought any further relieve... it was like popping Tik-Tak. Then I did a thorough research and found that one of the most powerful antibiotics against chlamydia (and with excellent tissue penetration!) is rifampin. The catch? Well, chlamydia rapidly develops resistance to it and it fell out of favor...

In recent times, however, they found that when rifampin is taken with macrolide or tetracycline chlamydia does not develop resistance and the synergistic effect makes one powerful weapon against it. That was my hope.

I started one month therapy on azythormycin (beware, this antibiotic has long half life and should not be taken everyday!) and rifampin and my remaining symptoms started disappearing during the second week! I was peeing like a horse! One month after the therapy I was negative! And after another month I was positive again... but symptom free at last.

Then I started second one month therapy but used clarithormycin instead of azythomycin. Clarithromycin is newer macrolide and has the advantage to be taken every day (which is convenient for longer therapies). Supposedly it also has a bit better activity against chlamydia than azythormycin. So, I was negative again a month after the therapy... and then again positive!

Now I was really in despair and decided to poison myself with two month therapy on doxycyline and rifampin. And here I'm almost 3 months after the therapy and still negative and symptom free!

I don't think that doxy is better than clari. I think that the factors that helped me are the longer period on drugs and the use of two drugs. Actually I think that clarithromycin could do better job than doxy in this case. I never tried two months single drug therapy so I don't know if that would work...

I did this under monitoring of my uro. Don't do this without a medical advisory! Rifampin, especially when taken with other antibiotics, could melt your liver! Tetracycliens are bad for the stomach... and macrolides could bring you a heart attack! (but probably still less toxic than doxy).
Hello! I am glad you are cured. Could you answer these questions?

1) How did you get tested for clamidia? Urine culture? Semen Culture? Or only PCR? How do you know you didn't have any other infection?

2) Did you take clori, doxi or azithromicina any time before combining them with rifampil?

3) What were the dosages of your treatments?

4) What were your symptoms???

and especially

5) How did you get rifampin prescribed???? Do you have a trustworthy urologist that followed you during the treatment?

Thank you very much!
 

bringthemon

New member
Joined
May 14, 2016
Hello! I am glad you are cured. Could you answer these questions?

1) How did you get tested for clamidia? Urine culture? Semen Culture? Or only PCR? How do you know you didn't have any other infection?

2) Did you take clori, doxi or azithromicina any time before combining them with rifampil?

3) What were the dosages of your treatments?

4) What were your symptoms???

and especially

5) How did you get rifampin prescribed???? Do you have a trustworthy urologist that followed you during the treatment?

Thank you very much!
1. Initially I was diagnosed with EIA tests and later again with DFA tests. Both tests are performed on material obtained with a swab. The first PCR (on urine) I did was after my final therapy (I should have done it earlier as it is the most reliable, but it never occured to me). After that therapy I had 6 negative PCRs, two negative DFAs and few positive and negative EIAs. EIA is the least reliable and my uro agrees that I'm cured (no symptoms, small prostate) and we should not pay attention to these random positive results (EIAs for chlamydia are known for false positives by reacting on different bacteria). It is recommended non-PCR positive results for chlamydia to be retested with PCR. During the repeated abuse of antibiotics I developed mild bacterial urethritis and still have it (trying to cure it naturally after so much antibiotics). This happens because antibiotics disturb the normal urethral flora. Before this no other bacteria was found, except for chlamydia. But who knows for sure? It could be that thru the whole time I treated the wrong beast!

2. I went thru one month long single drug therapies with doxy, levo and different macrolides (clari, roxy, ery) and stuff I don't even remember. The first time I took azy was in combination with rifampin just because it was used so in the clinical trial. My uro considers azy to be inferior to clari. From my own research he could be right and it is easier to keep track on dosage when you take the pill every day (like with clari) than when you take it once every few days (like with azy).

3. Don't remember. I know how much pills I was taking, but I don't remember their weight. Better ask a doctor about that. Could be dangerous doing it on your own. Macrolides could give you a heart attack and rifampin could melt your liver.

4. Feeling of painful bump between legs. Yellow semen in low volume... and not the perfect urinating performance a young guy should have.

5. My urologist was in dismay. He had few hard to treat chlamydia cases, but nothing like this. He agreed to do the experiment, but he stronlgy objected agains doing two pills for longer than a month or 40 days max... I took them for two months on my own and probably it was an overkill. Besides, in my country, although illegal, is very easy to buy antibiotics without prescription. Sometimes I don't even bother to show it to the pharmacist.

And one last advice. Before treating something, be sure that you actually have it. There are too many unreliable tests, labs and quacks. Prostatitis-like symptoms could also come from pelvic floor dysfunction or lower back issues.
 

bringthemon

New member
Joined
May 14, 2016
Hi. I think its possible that if you use antibiotics time will come and you will be immune with that specific medicine.
Not you but the microbes will become immune. It is still unclear if chlamydia is able to develop multi drug resistance (it is discussed and there are some claims, but never proven as far as I know). However, chlamydia easely develops resistance against rifampin, which makes it useless, but research shows that no resistance is developed if rifampin is combined with tetracyclines or macrolides. Rifampin is one of the most potent drugs against chlamydia and its cousin rifalazil even more so, if research is to be beleived.
 

iwillbecured

New member
Joined
Apr 11, 2011
You guys just randomly came into my mind today. I realised it's been so long now since I suffered any UTI's or prostate infections. I've not had any antibiotics for years, and I continue to take my allicinmax every day :) If I feel tension in the pelvic area, then I do my stretches and reverse kegels to relax the pelvic floor.

Anyway, I'm just checking in here to say that I am still "cured". No relapse... Just giving you guys some hope for anyone suffering.

I want to stress this again: Prostatitis seems to be a mix of infection + muscle tension. You have to deal with both problems, because they feed off each other. Towards the end, when I was finally beating this thing, I would cycle. Meaning, the symptoms would go away, come back, go away, come back.... Each time they came back the symptoms would be less severe until it just fizzled out. I think the immune system might be overactive in that area because of the inflammation and chronic infection. Eventually it will calm down... but may give you prostate infection symptoms.

Anyone reading this thread, you can beat it. My friend also beat it using a similar method as me. It may take a while, but don't give up. :)
 

JoeRider

New member
Joined
Sep 24, 2016
Hey guys

:wave: Hey guys just read a lot of pages from this forum and saw theres lot of good info here. i just have a recent case of this disease and have mild sympthoms but the worst of this is having this long courses of antibiotics. So im alredy making preparations for traveling to georgia to look for the phage therapy. Saw lots of info from sparky that just make more interested and think that this coud be a good way as mi prostatitis is bacterial. I dont know if he finally got that treatment but if theres anyone here that has takent that treatment or any reliable info on this it would be of great help thanks.
 

JoeRider

New member
Joined
Sep 24, 2016
Thanks guys

Have to say that the story of Jhony 1 has really give me a lot of hope as i have the same enterococcus im on an unasyn course that as by some suggestions here im gonna try for me it clear a lot of sympthoms so il finish it and if my cultures are negative then i m starting the healing process if they dont then levo that i have a 750 mg prescription already but im trying to avoid. For the side effects im also on colloidal silver. i want to thank Jhony 1 for his always positive attitude tru all of this. And the other like kite surfer i will be cured that showed me that if you figth you can make it.
 

Jan567

New member
Joined
Nov 9, 2016
an option

Hey guys. I am aware that every case of the illness is different and there is no easy way to resolve the problem However if you are willing to do anything to get rid of your symptoms please try diclofenac sodium. It is a very popular a nonsteroidal anti-inflammatory drug and you can buy it under many names in any drugstore, without a prescription. Its anti-inflammatory properties are a little bit different than other similar drugs. If you were given diffrent anti-inflammatory drug by your physician in the past and it did not work, please try diclofenac sodium. Taking 50-100 mg a day for a period of 2 weeks should help to ease the pain or discomfort. If not then do not use it for a longer period of time because it is not good for your stomach.

Please remember that any physical illness is also related to the mind. If drugs do not help and you can not get rid of you physical symptoms I suggest that you have a counseling session with the psychotherapist. It might help to ease your emotional state and physical symptoms as well.

Best of luck.
 

onepguy

New member
Joined
Dec 24, 2016
I had prostatitis for 5 years now, it's really an awful condition. I just want to say I'm glad I found this forum. If only I found out about this forum 5 years ago so that I could go through this with everyone here with all the support, instead of going through it alone. It's already hard having to deal with this miserable condition, but to go through it alone and not tell anyone and keeping it to myself makes it a lot worse. :/ I think it's awesome that everyone here is so eager to help one another to beat this f'd up condition.

Iwillbecured, are you still active on this forum? I tried adding u as a friend to ask a few questions because I read about the supplements you talked about and I agree with you 100% that the reason why this condition lingers on is because of the biofilms. Thank you for everyone's contribution on here...it is really helpful.
 

kv12345

New member
Joined
Apr 17, 2017
Still in forum?

Are you still on this forum? i am new to the forum and would like to ask you a few questions regarding the condition
 

HarryCrumb

New member
Joined
May 17, 2011
Anybody get on here much anymore? Never did get rid of mine, but in the last year started handling it better, found a couple of things of interest, food makes it worse, just food in general, I generally stick to a low calorie diet and exercise and my symptoms were not as bad. Had been exercising and not have too much of a problem with it, then I made the mistake of doing ab work in the form of crunches, big mistake on my part, been laid up in the bed ever sense, irritated the pelvic floor and made it worse, lots of pelvic pain and burning, after I had first done the ab exercises I couldn't hardly urinate for 1 week only a few drops would come out at a time, that has been 20 days ago and still sore as hell in the pelvic floor and burns to urinate, will never do ab crunches again after that. I can understand why I am hurting though I did do a lot of ab crunches squeezing the ab muscles and lying leg raises which targets the lower ab/pelvic floor hard, big mistake on my part.

Oh here is an interesting one, anybody ever have the pelvic spasms where small drops of urine come out and you keep spasming in the pelvic floor?
I had that and then had a bowl movement and had some type of butthole or bowel spasms, it was awful I kept spasming through the rectum and pooping tiny bits every few minutes for about 1 hour, suffice to say irritated the pelvic floor even more.

But I will say probably one of the best days I had, a while back, was when I went for an extremely long walk,2 hours, I wore a hoodie, lots of sweat, warm day, had a blister on my toe even,feet were very tired, but I felt fantastic.

Antibiotics I can tell cause a calming affect on the urine, I think that was why some of us will be prescribed them and the burning seems to stop, like it helps, but the prostatitis itself never goes away, I've noticed over the years when it would burn like hell and I'd swear surly this is an infection, doctor would test urine, nothing found,I would beg for a script of cipro and many times it would calm down whatever was irritated, so IMO I think some of the antibiotics produce a calming affect on inflamed tissue and settle down burning, with that noted the only antibiotic that has any affect it seems was cipro, all the other ones actually made the symptoms worse for some reason such as they would start killing the erection and I would get this dull pain in the pelvic and penis area, which is strange, almost like they were irritating something to where the muscle was tightening and aching, whereas the cripo did not do that but instead calmed downed irritation, strange stuff.

I put on a lot of weight laying in the bed for almost a decade from the Chronic Prostatitis, of interest is that I may have some type of auto immune disease, since I have psoriasis on my right and left fingers on the side of the thumb and index finger, according to online psoriasis is caused by an auto immune disease. I've also noticed I have bad reactions too many things, protein powder, diet pills , I won't take any kind of health food supplements or bodybuilding supplements I have always had bad reactions to that stuff as in burning to urinate, back aches, that sort of stuff. klondike ice cream bars give me hives all in the roof of my mouth, recently I had an allergic reaction to jelly beans, which was crazy, because I have eaten jelly beans since I was a little kid. I remember as a kid my grandma feeding me walnut ice cream, that is when I learned I was allergic to walnuts, and spent an hour outside throwing up.

Anyways that is my update, that's all I've got.
 

happy2bhere

Observing cool stuff
Joined
Aug 8, 2012
Location
INternets
This story came in bits and pieces. Not sure of every detail.

Family member *by marriage* went to doc concerned of his many trips to the bathroom at night. Doc wanting to find a "cause" discovered tumors on adrenals - whether the two are related or it was a coincidence, I am not sure. (I am female. I don't have a prostate problem )

He began his journey of treatment. Following a week after some air travel - and at home, he began shaking his left arm to get it to "wake up." Then, his leg. He then turned to his wife, my sister, and reported the tingling on left side of face. To the ER they go.

His BP was sky high. Everything else was secondary to bring his BP down quick.

Even the stroke had to wait. The decision was made to transport to another medical hospital *Texas, that could better treat him. The driver refused. Said he would not make it.

Another EMS was found and on their way they go.

At this new hospital, they also found a large aneurysm and a blood clot.

He was put into a medical coma. The stroke healed itself? The aneurysm was operated on. Tumors (adrenals?) removed. He was on a vent for two weeks. And in a halo. (His contract with work was up so he was basically let go while in ICU. And they had put the house up for sale to move closer to new work place).

$600,000 later -- He is healthy somewhat once again...although I did not ask about the prostate.

It's good to get it checked.
 

Togive

New member
Joined
Aug 10, 2017
Thank you all for your contributions. I have read the whole thread and now I know so much more !!! I would like to ask you something. I am on my second week on cipro, but I would like to start iwillbecured protocol too. I know I can not combine quercetin with cipro, what should I do then when I finish cipro ( i thking I will take it 4-6 weeks) ? So after finishing cipro, should I start taking another abx, or maybe just count on my white blood cells ? Which other abx should I ask my uro for? I should add last time I used cipro it did not remove my symptoms, but afer 2 weeks it significantly decreased pain during DRE. Now I also feel a bit better since I started taking it, but it can be due to a-blocker I am taking too ... :confused:

Regards

//edit: Also, as I am student, I simply can't afford Allicinmax, which is not sold in my country. I can buy and use solgar Allicin which is 500mg garlic powder standarized for 1500 µg of allicin. Is it anywhere close ot allimax? Does it make ANY sense it take it instead of allimax (which certainly i can't get)? Maybe it would be enough strong as my symptoms are chronic but not as strong as some mentioned here though, no severe pain, rather frequency&urgency and discomfort...

//edit 2: how do you think iwillbecured, does it make sense to do your protocol without abx, but strenghtening immune system with sport and diet instead?

Hello kensai and others,

I hope you've got some relief. This issue can really be painful. I suffered from it in the past and got some relief and got healed in Jesus Name, Praise God. Your healing and the healings of others are coming if they haven't already come.

Meanwhile, I imported Prosta Q from America and they will really helpful. I have about 4-7 bottles of Prosta Q left and would like to give them out. I am happy to send them by post to you if you are interested..Or to anyone who feels the pain and genuinely can't afford Prosta Q. Prosta Q is good..At least in my case, it was really helpful in overcoming the pain. Praise God again. The pain can make people mad. Not good at all.

My email is samuelokoh0@gmail.com.

Please send me an email so I can ship the 5 bottles of Prota Q to you. They will expire next year and I don't want this item to go to waste.

Thanks
 

Togive

New member
Joined
Aug 10, 2017
Anybody get on here much anymore? Never did get rid of mine, but in the last year started handling it better, found a couple of things of interest, food makes it worse, just food in general, I generally stick to a low calorie diet and exercise and my symptoms were not as bad. Had been exercising and not have too much of a problem with it, then I made the mistake of doing ab work in the form of crunches, big mistake on my part, been laid up in the bed ever sense, irritated the pelvic floor and made it worse, lots of pelvic pain and burning, after I had first done the ab exercises I couldn't hardly urinate for 1 week only a few drops would come out at a time, that has been 20 days ago and still sore as hell in the pelvic floor and burns to urinate, will never do ab crunches again after that. I can understand why I am hurting though I did do a lot of ab crunches squeezing the ab muscles and lying leg raises which targets the lower ab/pelvic floor hard, big mistake on my part.

Oh here is an interesting one, anybody ever have the pelvic spasms where small drops of urine come out and you keep spasming in the pelvic floor?
I had that and then had a bowl movement and had some type of butthole or bowel spasms, it was awful I kept spasming through the rectum and pooping tiny bits every few minutes for about 1 hour, suffice to say irritated the pelvic floor even more.

But I will say probably one of the best days I had, a while back, was when I went for an extremely long walk,2 hours, I wore a hoodie, lots of sweat, warm day, had a blister on my toe even,feet were very tired, but I felt fantastic.

Antibiotics I can tell cause a calming affect on the urine, I think that was why some of us will be prescribed them and the burning seems to stop, like it helps, but the prostatitis itself never goes away, I've noticed over the years when it would burn like hell and I'd swear surly this is an infection, doctor would test urine, nothing found,I would beg for a script of cipro and many times it would calm down whatever was irritated, so IMO I think some of the antibiotics produce a calming affect on inflamed tissue and settle down burning, with that noted the only antibiotic that has any affect it seems was cipro, all the other ones actually made the symptoms worse for some reason such as they would start killing the erection and I would get this dull pain in the pelvic and penis area, which is strange, almost like they were irritating something to where the muscle was tightening and aching, whereas the cripo did not do that but instead calmed downed irritation, strange stuff.

I put on a lot of weight laying in the bed for almost a decade from the Chronic Prostatitis, of interest is that I may have some type of auto immune disease, since I have psoriasis on my right and left fingers on the side of the thumb and index finger, according to online psoriasis is caused by an auto immune disease. I've also noticed I have bad reactions too many things, protein powder, diet pills , I won't take any kind of health food supplements or bodybuilding supplements I have always had bad reactions to that stuff as in burning to urinate, back aches, that sort of stuff. klondike ice cream bars give me hives all in the roof of my mouth, recently I had an allergic reaction to jelly beans, which was crazy, because I have eaten jelly beans since I was a little kid. I remember as a kid my grandma feeding me walnut ice cream, that is when I learned I was allergic to walnuts, and spent an hour outside throwing up.

Anyways that is my update, that's all I've got.
Hello Bro,

Hang in there. It will get better. Please also study your body as you have been doing and know what works and what helps you in alleviating the pain.

I wish you all the best bro.
 

Cb8128

New member
Joined
Oct 22, 2017
Hi everyone, i am a realatively healthy 25 yr old and I see this is a fairly old and am hoping I can get some response eventually, but I want to share what I'm going through and get your thoughts. So all of my issues began after a condom broke without me knowing and we continued for some time. The girl, I later found out was someone who slept around at lot as we were in a college town. So STDs freaked me out and she was on birth control and not worried at all about the break but still I was worried about the slight chance of pregnancy. On top of this I had a very stressful few weeks of school coming on. So you could say I was pretty stressed after that. Four days after the encounter I noticed a slight burning in the tip of the penis with some slight redness and then a need to urinate often and it was painful but not so much during urination more so after rating the pain maybe a 4/10. I also noticed it took me a bit to start a stream and then afterwards I'd dribble a little in my pants. I was worried I had a std but I waited five days to see if maybe it was just irritation of some kind. Throughout those days a general illness of the lower abdomen/pelvis was noticed especially with a full bladder and I felt like I had to urinate often. Also I noticed I was waking up at night with the penis tip pain and my stomach seemed like it wouldn't stop growling. One night I woke up feeling warm and anxious and decided it was time to get tested. I also want to add I wasn't getting up at night to urinate either which is normal for me. So five days after symptoms came on I went to the doc. She tested my urine for Chlamydia and gonorrhea and treated me for it given my circumstances with a shot of ceftriaxon, and a single dose of azithromyocin. I felt better the next day and even better the second day and slept well those nights without the stomach growling. Three days later they called me and said I was negative for Chlamydia and gonorrhea and I told them I was better but symptoms were not completely gone. They also said my urine analysis had no signs of blood or infection. So they gave me ten days of cipro I started them and then noticed the stomach growling during the first few days but as I continued treatment I didnt notice it as much. Plus the pain with a full bladder disappated and the pain in the penis tip disappears but the general ill pain behind the base of the penis in the pelvis was still noticed. After about 7 days of the cipro I was feeling almost normal except for an occasional slight pain between my scrotum and anus. The pain in the tip was gone, I was sleeping better but still I could kind of tell something wasn't quite right. After I finished the last few doses I felt pretty good but within a few days the pain in the penis was noticed and the overall ill feeling in the pelvis and stomach growling at night. It doesn't help that I sit all day for work BC when I am busy doing something or walking I don't really notice it as much although it is still there. I also want to add that in this time when symptoms were present I didn't go over 24 hours without masturbating BC it seemed like if I went longer the general pain worsened. I had no pain with ejaculation and it more so seemed to relieve the pain for a bit. Also throughout the time symptoms were present my penis seemed shribbled up but I could get hard watching porn, but the erection wasnt like before. So after finishing cipro and the symptoms coming back I called the doctor which was 6 days after my last dose. I waited hoping maybe it would go away but it didn't, I also throughout those few weeks had roughly 8 of my friends ask if I was ok BC I wasn't as talkative.. due to this pain and wondering what was going on with me. Since finishing the cipro I have felt slightly fatigued and generally just don't really want to do anything where as before I was always busy doing something around the house. So I was kind of miserable with that pain after the last dose of cipro for four days and called the doctor back. I talked her into letting me try metrodizanole as I saw some cases of trich causing prostatitis and reddness in the tip of the penis. She gave me 2 gram single dose. I read some places about prostate massage helping in treatment so I thought I'd explore into that and attempted to feel around... BC at this point I am ready to try anything as this pain is persistent and really degrading my quality of life. I noticed the left side of my prostate was slightly larger and mushier so I applied a little pressure and felt a burning pain in the area and it felt like I needed to urinate so I stopped messing with it. That was a bad idea bc I did this at 9pm and that burning rating maybe a 6/10 lasted until 2 am and I didn't sleep well. But by morning it calmed down to what it was on average roughly a 2-3/10the next day as it always did with the other treatments but still there's that general pain rating 3/10 in the area of the pelvis behind the penis and the stomach growling/fullness of abdomen and that's still here two days after the metradizonale (Sunday). I'm supposed to call back tomorrow if symptoms aren't gone which they aren't yet. So overall I have had this for three weeks although not as severe as after the first treatment of azithromyocin and ceftriaxon, and then a few days during the last round of cipro. I really wish I had gotten a semen culture right when this started BC I feel it's infection but I would think more muscle dysfunction due to stress if it wasn't for the fatigue and stomach growling, and what I perceived as a swollen prostate. I don't know what to do next, I don't have a lot of money for a load of tests but don't want to continue this shot in the dark of antibiotics as I fear if I do have infection that it may make it resistant. So I will call the doc tomorrow if symptoms aren't gone and try to decide the next course of action. Id like to find bug is causing this so at least we could get long term antibiotics and monitor it through testing. I just want this to be over BC it is quite miserable and I have only dealt with it for a few weeks and don't want it to turn into years like some of you. I feel terrible for you all for real. So until then I'm going to try to stay up on vitamins and try to relax which is hard BC I feel like this thought of continued pain consumes my mind 80 percent of the day. Sorry for the long post and I'll keep you guys updated
 

onepguy

New member
Joined
Dec 24, 2016
Hello, I'm currently getting treatment in Tbilisi Georgia using Phage Therapy. It could be a potential cure for chronic bacterial prostatitis. Will be posting a daily journal on my experience.
 


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