What to do about my undiagnosed illness


New member
Nov 29, 2021
So over a few months ago and after just having moved to South Washington I came down with some severe illness. All blood tests

came back negative and the doctors provide zero follow up despite my complaints. Some of the symptoms include severe fatigue,

sleeping 14 hours a day, nausea, unable to concentrate, and shortness of breath. When it just started my heart rate was over 100

bpm. I understand there really isn't much you can do on your end so I was wondering what advice you could give. I literally can't

think of anything forget not having ability look into it. I'm currently looking at virtual services and getting my medi-cal insurance

up in hopes they can cover it.


perpetual student
Dec 3, 2007
Texas, USA
We can't possibly diagnose. We can share our own experiences. You did not say what blood tests were negative. From my experience, I suggest you look into iron deficiency.

Iron deficiency anemia signs and symptoms may include:
  • Extreme fatigue
  • Weakness
  • Pale skin
  • Chest pain, fast heartbeat or shortness of breath
  • Headache, dizziness or lightheadedness
  • Cold hands and feet
  • Inflammation or soreness of your tongue
  • Brittle nails
  • Unusual cravings for non-nutritive substances, such as ice, dirt or starch
  • Poor appetite, especially in infants and children with iron deficiency anemia


New member
May 19, 2022
My legs had started bothering me while I was in my 20s – the calves of my legs became hard as rock and it was difficult to walk. I saw several specialists, and one said, "you have the legs of a 60-year old woman," - my own mother was 60 at the time and getting around better than I was. I had seen one specialist who thought surgery might be an option but then decided against it. Some doctors I saw just thought I needed to walk more!

But the family physician got really involved and referred me to the local hospital to get an ultrasound. These results alarmed the ultrasound specialist, who immediately contacted my doctor who then became even more concerned. She was the one who then contacted NIH on my behalf. I was accepted into this program along with all my sisters and brothers who were experiencing the same problem. This shared condition was of special interest to NIH.