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  #91  
Old 07-28-2013, 08:38 AM
antiquack antiquack is offline
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Quote:
Originally Posted by sparky90 View Post



I highly doubt the varicocele is causing your elevated WBC. I cannot see a reason for it doing this, as it is nothing more than a varicose vein, not a pathogen or injury of any sort.

-Sparky
Hi Sparky, hope you are doing well.

Just wanted to let you know I'm now entertaining the theory than no infection at all is causing my elevated semen WBC. It seems it's plausible. Eg. one study attempts to show that elevated WBC is due to virus rather than pathogen:
http://www.ncbi.nlm.nih.gov/pubmed/11966574

So, I may just have a varicocele (causing the pain, swelling and discomfort) and some other 'unidentified' issue causing the high WBC.

Hardly a complete answer but I've had every other path closed on me, so now trying this one.. will let you know what I find out, if anything at all
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  #92  
Old 08-22-2013, 11:10 AM
sow&reap sow&reap is offline
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Default not doing so well

Hello friends.

I have not been doing well lately. I think I may have a full blwon infection again...perhaps it an infection. perhaps nerve damage. perhaps the PC muscle. everything is dysfunctional down there. I have an aching epididymis. I also have a burning sensation around / below my anus. perhaps this is a PC muscle issue or levator Ani. perhaps this is an infection....perhaps nerve damage..I dunno. I am really down about all of it.

I will be seeing a pelvic floor specialist soon. I am also starting Doxycycline again.

I felt best four months ago when I went on a low sugar diet and used a ketaconazole cream directly on my scrotum...I thought I was cured.

I am too tired right now for one of my long winded posts. My motive instead is to simply come back here and get back on the research wagon and to eat some humble pie whilst doing it

I always feel so much better knowing I am not alone here. sounds cruel but it helps to know others know how hurtful emotionally and physically this all is.....

thanks guys
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  #93  
Old 08-22-2013, 06:16 PM
antiquack antiquack is offline
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Hey S&R, really sorry to hear man. Hope you manage to get a handle on it again. The one comfort I've always had is that when I get a 'pain free' season I can always refer back to it and say well I can do it again.

Actually I've regressed a bit too. After going through a supp plan that seemed to be helping with the pain, my clinical results have been coming back worse. I have way more white blood cells in my semen samples than ever before.

But some good news on the horizon the last 2 weeks. My last 2 semen samples have had 'scanty' growth of enteroccocos - I will be submitting another one in a week to confirm a 3rd time. Apparently its NOT ABX resistant and a course of Augmentin should kill it.

If you read my history you will have seen I've already been on 3 mths of all sorts of ABX, even 2 weeks of hardcore IV ABX. I can't believe that after all that I would still have a simple organism growing around my epi or prostate.. really quite strange. Which is why I'm opting for a 3rd sample to really confirm this. I would be much more convinced if the growth was more than just 'scanty' which I guess could indicate contamination of the sample..

Anyway thats the only update I have now. More to come when I have further results. Chin up buddy lets fight this thing together. There's way more to life out there!
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  #94  
Old 08-23-2013, 08:32 AM
sow&reap sow&reap is offline
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Default thanks so much

thanks friend

really appreicated

I agree - referencing the good times is so helpful

1. was your doctor open to the semen samples?

2. My ultrasound clearly shows inflammation of the epi: do you beleive I simply have chronic inflammation or do you believe that the inflammation could be an indicator that an infection still lingers

3. where can I read about your history

Again thanks!
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  #95  
Old 11-03-2013, 02:36 AM
antiquack antiquack is offline
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Hi S&R, apologies for the delay in getting back to you. I am pleased to say I have mostly been living a normal life, which means your mind goes away from forums, cures etc to the more normal things in life.. but I wanted to share some progress with you.


Well as I wrote back in August I had very high WBC count from a semen sample taken then. After that I went on a vacation and spent several weeks travelling, and after that I was back at work pretty hardcore for a few weeks. Long story short, the pain was pretty much subsiding and I was engrossed in normal life, so I never went to have the 3rd semen sample until a week ago.


Pleased to say that in this most recent sample the WBC is way down (still not normal, but close to it - about 10/HPF). However, no pathogen was found in the culture. This does not mean that enteroccocos was not the cause of my woes, but the less evidence I can find the less inclined I am to go back on ABX.


Actually, I am at the point now where I have decided not to do any more tests. I have the pain down to a managable level. I am getting more and more convinced that my high WBC is due to something other than infection. I may have had an infection at one stage, but now the pain and inflammation has been managed so well for months (bar a couple of flare ups) that it just doesn't bother me anymore.


As you can see in a post I wrote earlier, I may even be entertaining the possibility that my varicocele is causing the elevated WBC and occasional inflammation.


Do you know that research in WHAT causes elevated WBC in semen is practically at a stand still. I mean this makes sense - why would doctors and scientists look for non-infectious reasons for elevated WBC in semen when there's just no money in it! Firstly, hardly anyone gets their semen checked nowadays (unless you've got fertility issues) and if you are found to have high WBC, I bet something like 99.9% people have an infectious cause and are cured with a simple does of ABX! So I am the 0.1%, and so there's plenty of more important things out there to research. Unfortunate but I think this is the true state of the situation.


Remember I was on several months of hard core ABX. To no avail. Yes they found scanty growth of an ABX resistant E Coli in an early sample, but I was on weeks of the correct ABX after that. And honestly, if didn't kill it then I would have expected the pain to continue. It hasn't, and as I say apart from the odd flare up over the past 2 months I am pretty much able to live a normal life. If it wasn't for the ABX-induced tinnitus and clinical symptoms in my semen samples I wouldn't say I had a problem at all - just a varicocele that causes occasional discomfort.


I am now at the point where I am deciding to put this to rest. I may never know what caused what I have, I may never know exactly what it is I have, but I refuse to spend more weeks and months searching when I can simply live a normal life.


If for any reason the thing flares up again sustainably I guess it's back to the drawing board, but for now I am taking a break from this.


As for your questions:


1. was your doctor open to the semen samples?
Yes, I have a very good relationship with my doctor who basically allows me to use him as my personal clinic. I can drop in semen samples whenever I like, pay the fee, and he sends them to the lab for test and culture. He has been through this with me from day 1 so simply just says you can do as many as you like. I have done approx 12 semen tests and C&S up until now.


2. My ultrasound clearly shows inflammation of the epi: do you beleive I simply have chronic inflammation or do you believe that the inflammation could be an indicator that an infection still lingers
To be honest the last 2 ultrasounds I had showed no inflammation of the epi and simply showed a varicocele. You may have either chronic inflammation or infection, check my previous posts on a theoretical way to find out which it is (by checking the % of neutrophils vs Basophils in your semen sample) and find a lab that's willing to do it. I couldn't this far but if I was in your boat I would.


3. where can I read about your history
I have shared most of it on this thread.


Let me know if you have any more questions buddy and I will share whatever I know. All the best to you and keep fighting. It's taken me almost a year to put this to bed (and I don't even have a diagnosis/cure so it's mostly a psychological challenge!) so I sympathise with you and will definitely help out with info where I can.
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  #96  
Old 12-17-2013, 08:47 AM
sow&reap sow&reap is offline
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Default thank you

Hello friends,

I have been absent as per another medical issue - I have bi-polar disorder and slowly stopped my meds over the course of 18 months until the great crash in November 2013

Now I am back on my full dosage of meds. My mind is more relaxed and I seem much more able to put the pain out of my mind. Ironically, the less I think about it the less it hurts, the more I think, the more it hurts....thus, I have not been back to this site unitl today

1. 'worry' is my number one enemy. I would rather 10 aching fingers than one aching testicle as - you know - man must be fertile / strong / capable etc and the testicle is paramount to man'd identity

2. Guilt is an enemy as well. For years I used hard drugs and lived a gross lifestyle that I knew was not God's intention for me. But guilt is not God's intention either. Instead, I have sought forgiveness and I must move on

3. Stress is an enemy

4. Sugar makes me feel gross. I wish it was all in my head BUT sugar makes me feel gross. My whole body seems to suffer from sugar

5. I dont touch alcohol - it makes everything worse in a number of domains

WHAT HELPS:

1. rest
2. mindfulness - dont think about it
3. good diet - low sugar / low carbs and high fibre,protein etc.
4. inversion table
5. I saw a pelvic floor specialist - she encourasged me to massage the area between testes and anus - helpful
6. vigororous self massage of all hip / buttox / groin areas - I use a foam roller, frozen ice bottle, massage ball that you can heat up etc. Lots of strectching and relaxation including progreessive muscle relaxation

7. HOPE!!!! many people with these pains out grow them.

I have no idea!!!!!!! NONE: was this initially an infection? if so where and did it spread? was it a bio film? was this initially muscle tension? was this the result of my hard drug use which has been linked to many issues with muscle + bladder dysfunction... I dont know? was it fngal or bacterial? is it infection or inflammation? is it muscle or nerve is it all or none...?

I do know that I am trying harsd to stay positive. I have re-priortized my relationship with my Lord and Savior Jesus Christ. I have been going to counselling (for my mind) and trying to keep my mind stayed on God and not on my pain......

I DO NOT WANT to suggest for one moment that anyone who suffers from this gross pain simply needs to stop thinking about it and pray to God instead. No, this is not my intent. BUT, I became so engrossed in finding a cure that my mind - that research - began to wear me down......

I really have no answers. Today I am mostly pain free. I have a funny feeling in my epi and sometimes during the day I feel the sharpness of the pain.....but it is not constant and I can forget about it. I try to focus on the healthy aspects of my life and I cling to the hope that this will go away some day.

its not so bad right now. I hope all of you are doing Ok.

I do know that vigorous massage with guidance from a pelvic floor specialist - lots of relaxation and PMR, lots of mindfulness, and and a decent but def NOT a candida diet helps - fibre is essential. Hard stools in which you strain really cause the epi to be painful.

listen to your groin and hips - pay attention to any muscle pain or tightness

OH YEAH! Pelvic floor specialist says I have levator ani dysfunction - which makes sense - I have stored my severe anxiety in my hips for many years and not my neck or back........the levator ani - when irriated - feesl like the burning feeling in the anus that so many describe.....

super bug or super muscle tension? inflammatio or infection? mostly in the mind or "all in the ball" masturbation / sex or NO ejaculation - I just dont know....thus I am trying to NOT think about it for a season or to at very least accept what i cannot chnage and be thankful that the pain is manageable. Maybe this is the answer for me.....

THANK YOU ALL for your HELP and kindness - I have received so much hope and info from alot of you and I may experience a major flare up and find myself knee deep in research agian tomorrow and be asking alot of questions BUT for now I am simply going to try to keep my mind off of my discomfort and KEEP praying and KEEP massaging, stretching, and eating lots of anti-bacterial / anti-fungal foods

THANKS!!! and I hope you all find the answers you need or at least accept what cannot be answered...I am trying.....but I dont have all the answers...be weary of anyone who says they do!
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  #97  
Old 02-08-2014, 07:10 PM
tex tex is offline
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I have to make this short.... I have to go to work. If you feel like this might be caused by candida, look into pine oil or turpentine. I am on my third day of using this and my tongue is back to being red. I will give a little more info later.
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  #98  
Old 02-09-2014, 07:45 AM
sow&reap sow&reap is offline
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Default please do

Pine Oil & Turpentine

aren't these poisonous....? Perhaps your tongue is turning red from a toxic reaction. your body might be saying "stop."

PLease update

thanks
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  #99  
Old 02-09-2014, 12:21 PM
tex tex is offline
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If you look back at some of my posts you will find out a couple of things. I will tell you what I have done or am planning to do...... and I will tell you to research it for your self.

The things that I feel are ok to do...others might not.

Research Pine Oil. Pine needle oil. Do they sell it in health food stores?

What is turpentine?

How do both of them effect biofilms?

What I can say is that it is working for me. I have been doing fine. I am not drinking it like a bottle of water. More like what you would do with h2o2......another poison. Or baking soda and molasses.

Pine oil. Niacin. Magnesium. Sea Salt. Zinc.

I remember my grandmother talking about this when I was about 15 years old. It is what she used if she was sick. Hillbilly medication.
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  #100  
Old 02-09-2014, 07:31 PM
sow&reap sow&reap is offline
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Default thanks

Hi,

In all fairness I would look back at your research. I am completely unaware at this point and initially very skeptical.

that being said, I know you are trying to help and your remedy may prove to be exactly what I need

thank you
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  #101  
Old 02-09-2014, 07:40 PM
sow&reap sow&reap is offline
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Default ON a side note

Hey Tex. I am very interested in your use of nicotinamide. Do you have time to share your results with this product?

Thanks
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  #102  
Old 02-11-2014, 12:50 PM
tex tex is offline
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I found out by accident about niacinamide. I was in pain for a week, working long hours and took a five hour energy drink for the first time in my life. After drinking it I felt pretty good but starting feeling bad again about eight hours later. I looked up the ingredients of the drink.....did some research and found out the benefits of niacinamide. Anti-fungal, Bacteria...blah blah.

I didn't want to continue with the drinks because of the other chemicals used in the drink, so I bought a bottle of Niacinamide....not niacin. Found out that niacin hurts the kidneys after a while of use. Niacin works better....at first, but if you build up the niacinamide....you will be ok. I did have pain while loading up my body with Niacinamide but it got better in a week or so.

I might be wrong but I feel it serves two purposes for our situation. One the Anti fungal and bacteria part of it is pretty strong. Two, I believe it helps with blood circulation.

I try to keep it simple. Everyone says to stretch, relax, hot baths Why? Relief. What is the big picture? Relaxation helps blood flow to the area that hurts. It helps healing and gives pain relief. Less pain equals more energy to be used to heal.

Relaxations tools. Magnesium, Sea salt, zinc, melatonin at night. Everyone says not to take calcium but I have found that if you don't take it at times......you will throw your body out of where it needs to be. All the dosages depend on......you. lysine is another tool that is used for relaxation as well. It is mostly used in viral situations but if there is infection.....It helps.

If your diet is to fight candida.....it is actually an anti-inflammatory diet as well. Another relaxation tool to use....better blood flow.

Why exercise? Relaxation and blood flow. I don't mean walk.....I mean walk to work up to a jog, then run. Make your self sweat. When you urinate, you get rid of toxins. When you sweat you get rid of four times the toxins without loosing half the minerals.

If you cant exercise....h2o2. I feel half our muscle problem is that we are over working our lymph system. Exercise and h2o2 help your lymph system.

I don't believe in taking a lot of diuretics. I think doing so makes our bodies get rid of things we need to fight this crap.

I might be wrong in my thoughts. But it works fine for me. I am still hunting for the missing piece but and fine were I am....not a hundred percent, but I am able to work twelve hours a day....five days a week. I start feeling it on the fifth day though. especially if I am an undisciplined pig and eat a big ol cinnamon roll or two or three.....cant help it. Love them.

Doses? Up to you. How much you exercise? Up to you. Diet? Up to you.

Hope it helps.
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  #103  
Old 02-11-2014, 03:22 PM
sow&reap sow&reap is offline
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Default thanks Tex

Thanks

I will look into Niaciminde for sure.

I am quite fortunate. Though ultrasound shows increase in size indicative of inflammation, I find a good diet controls the pain for the most part.

I am able to function just fine. I work FT. I go to gym 5 times a week. But from time to time I am prone to urinary frequency and general blah feeling sometimes with an aches in the back of my testicle

BUT, diet is the key for me. No sugar, low refined carbs. no white flour - lots of fresh protein and vegetables and within 5-7 days I feel great...but then those cravings kick in....haha

thanks again - much appreciated!
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  #104  
Old 07-21-2016, 11:11 AM
Carina Mellbin Carina Mellbin is offline
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Default Question

3. Constant urination / need to urinate with the dribbles, leaks, and feeling that I never quite emptied

How constant urination am I supposed to monitor to be certain?
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