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Old 06-14-2013, 07:39 PM
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Originally Posted by tristeza View Post
Anyways I'm going to go take a bath.
Just a suggestion, Epsom salts in the bath is excellent for muscle relaxation and spasms. My husband doesn't have prostatitis, but he has other muscle issues. I buy Epsom Salts in 6 pound bags, and I get 3 baths out of every bag...very therapeutic and inexpensive, and may help in your situation.
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  #1457  
Old 06-15-2013, 06:39 AM
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Hey Guys,

So this week has definitely been my best week so far. I just felt good down there. I did however have a flareup this afternoon that lasted a few hours. Some burning in my bladder and urgency. I have been stressed since yesterday (didn't realize I had been) so I believe this is why I flared. I am feeling a lot better now as I type. This is a reminder that I really can't let stress linger. Also, I have been extremely horney and have been trying to only have sex (ejaculate) once a week. I find that to be very challenging. I am very sexually attracted to my wife. I find myself fighting it back all the time. But I do believe I have to let that area heal. One thing to note is that I feel like I am getting more muscle spasms down there lately. No pain associated with it. I also think (not 100% sure) that I figured out how to relax my pelvic floor muscles. I'm working on that. The one symptom I do have nightly is a heaviness in the rectum area. Anyways I'm going to go take a bath.

At one point, I began having "twitches" down in the perineum, much like if your eyelid were to twitch or an involuntary muscle spasm in your arm or back. I believe this may have been my turning point.

-Sparky
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Old 06-16-2013, 05:24 AM
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Default Advice Please !

Hey guys

I did culture for semen and found staphylococcus haemolyticus moderate growth
The doctor prescribed moxifloxcine for 2 month (Avelox) i did not start yet , I'm asking if there are some supplements can help or rise the efficiency of the antibiotic with supplement or rise the penetration in the prostate gland , and i heard that avelox has long side effects , had any one tried it before ?
Please recommend me some sup can works best with antibiotic ?

Thank you
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Old 06-16-2013, 07:01 AM
malepelvicfloorcasualty malepelvicfloorcasualty is offline
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Default sparky, need advice

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Originally Posted by sparky90 View Post
Some very interesting posts here in the last few days. I'd like to say thank you to Kite Surfer and Iwillbecured for your wonderfull posts. I could not have responded to Harry's post any better. Kite Surfer, you really nailed some good information there.

I am very sorry to hear that you think I am beating a dead horse, Harry. I also would like to wish you the best in whichever path you choose to aid in your recovery, but I can damn sure tell you that removing your prostate is not the answer. But, to each his own. Also, I have had a trans-rectal ultrasound, of both my prostate and seminal vesicles. Both showed no signs of infection, whatsoever. Anyway, best of luck to you.

I'd like to mention that my only real symptom that is remaining is rectal pain along with other issues related to defecation. I have discussed this with my therapist, and she seems to agree with me completely that this remaining issue is most likely due to tension in my Pubococcygeus (PC) as well as my Puborectalis (PR) muscles. Just a quick bit of info on those muscles: The Pubococcygeus is the hammock-like muscle that stretches from your pubic bone all the way back to your coccyx (tailbone). Any tension in this muscle can cause a slew of problems, and refer pain to the other pelvic floor muscles. Currently, I'm having a difficult time defecating, as well as passing gas. Honestly, the only way to describe what I feel now, is an extremely tight muscle, and a feeling of constipation almost. It's like getting a cramp in the arch of your foot or in your calf. This affects mobility and function of the muscle. The PC and PR muscles are very much involved in the function of the anal sphincters, which explains my difficulty with defecating and passing gas.

Now, my theory on this is as follows. As we all know, this is a very personal problem, so I will disclose some very personal information in light of helping everyone else. The PC muscle is VERY involved with orgasm and ejaculation. It undergoes extreme contractions during ejaculation. In fact, the PC muscle is what men are told to workout and strengthen, who have premature ejaculation. I have read some very interesting things on some premature ejaculation sites (I personally do not suffer from this). My logic towards reading these sites, is to employ the opposite of their techniques, as we need to focus on lessening the tension and tone of these muscles, where as they want to increase it. I personally, have masturbated at least once a day for as long as I can remember. I also had a very active sex life with several girlfriends. I often practiced a technique that many pre-ejac guys refer to as "edging". This is where you masturbate for prolonged periods of time, delaying your orgasm. This puts immense amounts of strain and pressure on your PC muscles, as well as other pelvic muscles. It's like going heavy on a set of bench presses for your chest. I did not do this for any other reason than personal pleasure, and kind of figured it out on my own over time. I never even knew there was a name for this practice until a few weeks ago. This helps these men with pre-ejac last longer during intercourse. I never put two and two together, but, not to brag, I could last very, very long periods of time when having sex with my girlfriends, and sometimes it was even difficult to achieve orgasm. This is because over time, I think I OVERTONED my PC muscle so much, that now, beyond the benefit of prolonged intercourse, I now have muscle pain due to hypertonicity and tension. What I'm doing now is abstaining for a while. No sex, no masturbation. It's tough, but I think this is the missing piece to the puzzle. I said it once, I'll say it again, if you were to injure your shoulder at the gym, you would not go back the next day, or even week perhaps, and start doing shoulder presses. You NEED to let the muscles rest, recover, and return to their normal state. Time to heal is key. Every time I ejaculated throughout all of this, I was prolonging my recovery.

Now, my question to all of you, is how often before this, AND how often during this whole ordeal, were you having sex and/or masturbating? It's not the answer or cure-all, but it definitely has a detrimental effect on the recovery process. Orgasm puts an extraordinary amount of pressure and tension on the pelvic muscles. And for your information Harry, the pelvic muscles are in fact what allow you to ejaculate. The prostate contracts as well, but minimally compared to the rhythmic contractions of the pelvic muscles. The prostate, more or less, is a mixing site for your seminal fluid and sperm, as well as the entrance site where it gains access to the urethra. I can assure you that your prostate alone is not giving you the force that allows you to shoot your load however far it may be away from your body. This requires exceptional amounts of force, achieved through the contractions of the pelvic muscles.

Anyway, just some food for thought. Glad to see you guys are still fighting. Stick with it. I'd also like to add that I too get the "jelly-like" clumps in my urine when I abstain for prolonged periods (about a week and a half now). This is most likely not due to an infection, but rather build up of seminal fluids, etc. Remember, your urine passes through your prostate upon leaving the bladder.

-Sparky
Sparky, you can call me Andrew. I'm addressing you personally because my desperate internet searches have lead me to this blog and consequently to your story, which seems remarkably similar to mine. Like you, a couple years ago, after an unprotected sexual encounter, I developed severe urological symptoms, including extreme pain in perineum, in between thighs, lower back at base of penis, and radiating/shooting down my legs and thighs. I had markedly decreased libido and severe erectile dysfunction, as well as pain when I did manage erections, orgasms took hours to achieve and were incredibly "stunted" (felt incredibly unsatisfactory and unpleasurable with almost no semen coming out). I also had severe urinary retention/difficulty urinating, as well as fecal retention, difficulty defecating and even passing gas. I was convinc.ed I had contracted some horrible STI and spent months floating from clinic doctor to ER doctor to urologist. I ended up with the diagnosis of "Chronic Prostatitis" and was put on huge amounts of antibiotics. None seemed to work except for doxycycline, which caused a sudden remiss of all of my symptoms. For nearly a year I took doxycycline everyday and was symptom free, until it seemed to "stop working". I was desperate and once more fled to doctor after doctor, told it was in my head, and put on trial after trial of ineffective antibiotics.

Amidst all my urological symptoms (which, as any young man, would be the most disturbing issue with this disorder) my fecal retention got so bad I literally could not have a bowel movement for nearly a week. It felt like there was something physically blocking my anus and I assumed I must have some sort of massive hemmorhoid or growth obstructing my bowel, so I panicked and went to the hospital. They gave me a soap sud enema which barely worked, and referred me to an ano-rectal specialist, who was nice enough to make an appt with me the next day. He took one look at me, told me, much to my surprise, that not only were there were no physical anomalies with my anus/rectum, but my prostate wasn't swollen at all. He undiagnosed me with prostatitis and told me about and diagnosed me with pelvic floor muscular dysfunction and how the spasms of the the pelvic floor muscles can cause all my symptoms, including the urinary, defecatory, and even sexual ones. He said it is much more common in women, and in when it appears in men, it is very frequently misdiagnosed as prostatitis as it can effectively "mirror" the symptoms. He gave me a diltiazem based cream to relax my anal spasm and told me to stop all antibiotics and follow up with him in two weeks to discuss treatment.

I'm becoming very dismayed because the cream works only very slightly and my symptoms, perhaps as a curse of being self aware now of what my condition is, have only gotten worse. A few days later I was in so much pain, I had to go to the ER again and was given percocet for pain and clonazepam to relax the muscles and told to followup with ano-rectal specialist. The clonazepam helps mildly, just about as much as the cream, but still nowhere near fixes me. I was looking online and it seems the most effective treatment seems to be some kind of aggressive physical therapy. But I'm worried because I can't seem to find any physical therapists in my area who specialize in this. You've mentioned you've undergone therapy and have experienced a good deal of success and I was wondering what treatment you exactly underwent and how well it worked? Is there a cure for this, will I ever live a normal live again?

I feel stuck right now because the specialist I need to see's office is closed on weekends, so I can't even make the appt til tomorow, and then I have to wait for it, and then I'm concerned the specialist won't know who to refer me to? Is there a special type of physical therapist I should look for? does insurance cover it? Is there anything I can do as a home remedy? I've tried massaging myself and the pain is just too excruciating to handle, plus I have no idea what I'm doing. I'm feeling very hopeless, please tell me some good news to look forward to.
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  #1460  
Old 06-18-2013, 06:51 AM
sam87 sam87 is offline
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Default ( transrectal resection of ejaculation ducts)

Hello

I want to ask about a surgery call. ( transrectal resection of ejaculation ducts) (TURED ) is this will help with chronic bacterial prostatitis ? Many docotor recommend it because of recurrent infection and taking many antibiotics without helping , this surgery might help

Has any one have an idea about this surgery?

Thanks
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  #1461  
Old 06-18-2013, 06:04 PM
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Originally Posted by malepelvicfloorcasualty View Post
Sparky, you can call me Andrew. I'm addressing you personally because my desperate internet searches have lead me to this blog and consequently to your story, which seems remarkably similar to mine. Like you, a couple years ago, after an unprotected sexual encounter, I developed severe urological symptoms, including extreme pain in perineum, in between thighs, lower back at base of penis, and radiating/shooting down my legs and thighs. I had markedly decreased libido and severe erectile dysfunction, as well as pain when I did manage erections, orgasms took hours to achieve and were incredibly "stunted" (felt incredibly unsatisfactory and unpleasurable with almost no semen coming out). I also had severe urinary retention/difficulty urinating, as well as fecal retention, difficulty defecating and even passing gas. I was convinc.ed I had contracted some horrible STI and spent months floating from clinic doctor to ER doctor to urologist. I ended up with the diagnosis of "Chronic Prostatitis" and was put on huge amounts of antibiotics. None seemed to work except for doxycycline, which caused a sudden remiss of all of my symptoms. For nearly a year I took doxycycline everyday and was symptom free, until it seemed to "stop working". I was desperate and once more fled to doctor after doctor, told it was in my head, and put on trial after trial of ineffective antibiotics.

Amidst all my urological symptoms (which, as any young man, would be the most disturbing issue with this disorder) my fecal retention got so bad I literally could not have a bowel movement for nearly a week. It felt like there was something physically blocking my anus and I assumed I must have some sort of massive hemmorhoid or growth obstructing my bowel, so I panicked and went to the hospital. They gave me a soap sud enema which barely worked, and referred me to an ano-rectal specialist, who was nice enough to make an appt with me the next day. He took one look at me, told me, much to my surprise, that not only were there were no physical anomalies with my anus/rectum, but my prostate wasn't swollen at all. He undiagnosed me with prostatitis and told me about and diagnosed me with pelvic floor muscular dysfunction and how the spasms of the the pelvic floor muscles can cause all my symptoms, including the urinary, defecatory, and even sexual ones. He said it is much more common in women, and in when it appears in men, it is very frequently misdiagnosed as prostatitis as it can effectively "mirror" the symptoms. He gave me a diltiazem based cream to relax my anal spasm and told me to stop all antibiotics and follow up with him in two weeks to discuss treatment.

I'm becoming very dismayed because the cream works only very slightly and my symptoms, perhaps as a curse of being self aware now of what my condition is, have only gotten worse. A few days later I was in so much pain, I had to go to the ER again and was given percocet for pain and clonazepam to relax the muscles and told to followup with ano-rectal specialist. The clonazepam helps mildly, just about as much as the cream, but still nowhere near fixes me. I was looking online and it seems the most effective treatment seems to be some kind of aggressive physical therapy. But I'm worried because I can't seem to find any physical therapists in my area who specialize in this. You've mentioned you've undergone therapy and have experienced a good deal of success and I was wondering what treatment you exactly underwent and how well it worked? Is there a cure for this, will I ever live a normal live again?

I feel stuck right now because the specialist I need to see's office is closed on weekends, so I can't even make the appt til tomorow, and then I have to wait for it, and then I'm concerned the specialist won't know who to refer me to? Is there a special type of physical therapist I should look for? does insurance cover it? Is there anything I can do as a home remedy? I've tried massaging myself and the pain is just too excruciating to handle, plus I have no idea what I'm doing. I'm feeling very hopeless, please tell me some good news to look forward to.
You have no clue how lucky you are that you actually came across a doctor who was educated on pelvic floor disorders, or believed in their existence for that matter. I'm guessing the cream he gave you is a muscle-relaxer based cream, so that would probably help. The physical therapists I saw were pelvic floor specialists. They did a lot of the same things that the sports chiropractor, who I later saw, did. Essentially, a lot of mobility work in the hip/groin/glute region, as well as massage both externally and internally (pretty awkward at first as I'm sure you can imagine how this takes place). I'm sure you will live normally again, it just takes time to get there. Trust me I had the same symptoms. Problems with defecation were one of my more bothersome ones. Have you searched for a PT in your area? Have you seen the doctor again? As far as a home remedy, google "sitz baths" and try one immediately. Essentially this is just a hot/warm bath that you sit in (the tub doesn't even have to be that full) for about 15-20 minutes. This used to provide me with 100% relief, ultimately confirming in my mind that this was muscular for me.




Quote:
Originally Posted by sam87 View Post
Hello

I want to ask about a surgery call. ( transrectal resection of ejaculation ducts) (TURED ) is this will help with chronic bacterial prostatitis ? Many docotor recommend it because of recurrent infection and taking many antibiotics without helping , this surgery might help

Has any one have an idea about this surgery?

Thanks
In all honesty I've only heard of this surgery being done when there is a complete blockage of the seminal vesicles/ejaculatory ducts. Has the doctor diagnosed you with this? Surgery should always be last resort as it is usually invasive (especially in the genital organs), and should not be undergone without alternate opinions. Seems a bit extreme to me, but that's just my unprofessional/personal opinion.

-Sparky
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  #1462  
Old 06-19-2013, 12:15 AM
sam87 sam87 is offline
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Thank you sparky

So this surgery has nothing to do with the prostate which is the core of the problem because last ultra sound said seminal vesicles is mildly enlarged in size and are diffusely hypoechoic with some echogenic contents suggestive of possible infection

Actually i do not know what to do this disease is taking a big part of our life
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Old 06-19-2013, 04:55 PM
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Originally Posted by sam87 View Post
Thank you sparky

So this surgery has nothing to do with the prostate which is the core of the problem because last ultra sound said seminal vesicles is mildly enlarged in size and are diffusely hypoechoic with some echogenic contents suggestive of possible infection

Actually i do not know what to do this disease is taking a big part of our life

What type of ultrasound? Was it a trans-rectal ultrasound? Sorry if you have already stated this, but have you actually been diagnosed with some type of infection. Also, which doctor is saying this about your seminal vesicles? I'm not saying it has "nothing" to do with the prostate, but in all seriousness, the way that this whole situation gets centralized around the prostate is mind-blowing. More times than not, it doesn't even have anything to do with the prostate, especially when it is muscular (which is more prevalent than many wish to believe).

-Sparky
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  #1464  
Old 06-27-2013, 04:49 AM
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Default foul smelling urine

I think the best indication of whether an infection has caused your
chronic prostratitis is if you have foul smelling urine and fatigue. If you have
to change your underwear twice a day you have an infection!
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Old 07-06-2013, 10:39 AM
sam87 sam87 is offline
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Default Injection

Dear guys

I am planning to get prostate injection direct injection into prostate from doctor Guercini Federico in Roma Italy. Are you guys recommend me , have anyone tried a prostate injection or his injection , what possible side effects of these injection

Thank you , i,d like to hear opinions

Www.prostatitis2000.com
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  #1466  
Old 07-07-2013, 09:16 PM
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I read sparky story and found it interesting on pelvic muscles. unfortunately for me things seem to be different for him than me, he talked about his symptoms were better when he slept, my symptoms are at there worse when sleeping, he talked about sitz bath helping him,sitz bath never worked for me. If you read this sparky we should talk some time and compare more symptoms and affects of antibiotics on symptoms if you once upon a time took any.

For those that believe they are suffering from muscular problems of the pelvic region. I have a suggestion which has seemed to cure some people. I noted this some time back, again I state buy yourselves an enema bottle fill with hot water and squirt it up the rectum, it not only hits the prostate but you can feel it all in the pelvic muscles. This technique has cured many people on various forums, sadly but not surprisingly it didn't work for me. Interestingly enough I'm talking to a guy on another forum who believes his chronic prostatitis is from lifting weights, which seems to suggest he strained his pelvic region form heavy lifting.
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Old 07-13-2013, 03:22 AM
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Originally Posted by sam87 View Post
Dear guys

I am planning to get prostate injection direct injection into prostate from doctor Guercini Federico in Roma Italy. Are you guys recommend me , have anyone tried a prostate injection or his injection , what possible side effects of these injection

Thank you , i,d like to hear opinions

Www.prostatitis2000.com
I saw a doctor during my time of dealing with this who claimed to do this procedure. I received a slew of tests from him and lost a lot of money. It just didn't seem right as far as the whole way he had his practice set up (a lot more private than even a small town doctor's office). Long story short, he was scamming people and even doing prostate injections on people who did not have an infection (told me that I had Chlamydia which had been proven wrong by countless other tests). I can't see how this would not have been painful and potentially making people sick at the same time.

In my opinion, there are many, many advanced medical professionals in the world, and if they aren't doing prostate injections, and it hasn't been reviewed by other medical professionals, it is definitely something to be cautious of. You must understand that revolutionary ideas in medicine are very easily shared in today's age due to our amazing technology. A revolutionary procedure could be done for the first time ever, and then be published and begin being taught to other doctors within days or weeks due to the internet and the ability for doctors to quickly travel around the world and learn new procedures. The amount of information sharing between leading doctors is probably more than you would think, especially within medical journals. All I'm saying is that it's hard to believe only a "few" doctors can provide this "cure" (which is nothing more than an injection in a difficult place), yet there are thousands of doctors all around the world who can perform sophisticated, precise operations ranging from laser cutting prostate cancer operations to open heart or brain surgery.


Quote:
Originally Posted by HarryCrumb View Post
I read sparky story and found it interesting on pelvic muscles. unfortunately for me things seem to be different for him than me, he talked about his symptoms were better when he slept, my symptoms are at there worse when sleeping, he talked about sitz bath helping him,sitz bath never worked for me. If you read this sparky we should talk some time and compare more symptoms and affects of antibiotics on symptoms if you once upon a time took any.

For those that believe they are suffering from muscular problems of the pelvic region. I have a suggestion which has seemed to cure some people. I noted this some time back, again I state buy yourselves an enema bottle fill with hot water and squirt it up the rectum, it not only hits the prostate but you can feel it all in the pelvic muscles. This technique has cured many people on various forums, sadly but not surprisingly it didn't work for me. Interestingly enough I'm talking to a guy on another forum who believes his chronic prostatitis is from lifting weights, which seems to suggest he strained his pelvic region form heavy lifting.

I remember talking to you a long time ago about all of this, Harry. I hope you are doing better. I'm sorry to hear that none of the muscular treatments have worked for you. I have taken many antibiotics so feel free to ask me any questions.

Also, the enema idea is not bad at all. I can see how that would probably work as the hot bath is essentially the same technique, but the enema would allow for more localized application of the hot water to the affected muscle groups. This is similar to how internal massage works more effectively for some people than just external massage. Many of these muscles are deep in the pelvis and are hard to reach.

-Sparky
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  #1468  
Old 07-20-2013, 02:34 PM
iwillbecured iwillbecured is offline
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I don't know if anyone remembers me? I just came to say hi! I hope people are doing better than when I was list here. I am still as far as I can tell "cured". The only thing I take now is 4 Allicin Max a day. I really like this supplement because it prevents me from getting sick with colds and flu. It also helped when I used it along with antibiotics when I had prostatitis. I no longer need antibiotics, quercetin or anything else... I don't even remember the last time I had pain or symptoms of prostatitis. I suffered from this condition for many years! And through consistent hard work, fighting it from multiple angles, I managed to either put it in remission for a long time or cured it. who knows? what I Know is that I feel the best I've ever felt in my entire life. I feel so healthy.

There is hope! You will be cured of this one day!!
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Old 07-28-2013, 08:34 AM
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Hi iwillbecured,

Thanks for coming back and posting your success story - there's way too much negativity around and its always refreshing to hear good news.

My story is a bit different. I have (I think) an infection in my left epididymis for 6 months now. I don't exhibit many signs of prostatitis at all, so its limited to the epididymis and vans deferens.

Went through the full journey.. 8 different 'incorrect' ABX, then found scanty growth of E Coli in a semen sample, then 3 months of 'correct' ABX, alternative treatments, etc. The pain was consistent for the first 2-3 months and mellowed off slightly over the last 2 months (Ive been off ABX now for 3 months). The last 10 semen samples I've had no pathogen identified but all have high to very high WBC counts.

You can read more of my history in the "Prostate - epididymis Journey to success...." thread.

Right now my pain is managable (can be described as a weak "kicked in the nuts" feeling) and the inflammation is still there. I also have a moderate varicocele on the same left teste and am now entertaining this theory:
1. My varicocele is causing the pain/swelling in left teste
2. The elevated WBC is not due to infection at all (still don't know what it might be due to). Some papers I've read recently suggest that men can have leukocytosperma without infection.

Anyway, if you get the time you can read more of my history over on the "Prostate - epididymis Journey to success...." thread and I'd love to hear your thoughts on my case. I've read your history and know you took quite a logical approach to yours so any suggestions/opinions are highly appreciated.
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Old 09-24-2013, 10:08 PM
Elph68 Elph68 is offline
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Hey Guys,

Viridans Streptococcus and enterococcus cause prostatitis and they are impossible to detect with commercial lab tests.

They also become multi-drug resistant and need some high level antibiotics for 8+weeks to clear ...

Very common, they are non purulent (not pus forming) so they just cause inflammation.

Cheers.
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