#1501  
Old 04-16-2014, 05:34 AM
gran torino gran torino is offline
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Default new guy from Europe

Dear Gentlemen,

This is my first post and at the beginning I would like to thank you all for so detailed information I found here and which helped me a lot in building my own strategy for winning with this horrible disease. After 7 months of fighting I have about 20-30% of initial symptoms and I hope I will have further improvements soon.

The whole thing started with me in August last year. My symptoms then were devastating and prevented normal life causing rapidly progressing depression - libido - 0 % , dull pain in the crotch , feeling the hot ball between the legs , pain in the back , buttocks , legs - not only the pain of various muscles (thighs, calves), but also burning and tingling of the skin down to the feet (similar things were described by Sparky as I remember), redness on the glans , urination every 0.5 h- 1 h , accompanied by pain, weak stream , urgency , getting up in the night , etc.
In general, the entire set which in some part most of us on this thread have experienced. First drugs which I took were augmentin and trimethoprim for 30days unfortunately without significant effects. Maybe because I had no laboratory tests made before and my bugs were not sensitive to them.
In the meantime, I started to read this thread and other sources what has increased my knowledge about Prostatitis. Before next medical visit I made lab test for bacteria presence and they found E.Faecalis not only in semen but also on my foreskin and glans as well. Antibiotics which I took later (Levofloxacinum, Cipro) were chosen according to sensitivity tests but also this time their effectiveness has proven to be poor and I didnít feel better at all.
Due to the above, I also decided to make tests for Lyme disease, Chlamydia, mycoplasma and ureaplasma. All results occurred to be negative (both blood and semen).

However alternatively I decided to improve my chances and take advantage of all the valuable information that I found on this thread and internet - just in case because I knew that finding a magic pill will be extremely difficult. I went back to jogging (30min daily), started to do internal massages of prostate and muscles in the area, eliminated fatty foods, sugar, alcohol and coffee completely, included more vegetables in my diet and started exercise to stretch muscles of the pelvic floor daily 30-40min. I also took supplements to enhance my immune system (Iwillbecured regimen apart from AllicinMax which I have to buy from UK because it is not available in my country). Belive it or not but my situation started to improve slightly every week. Of course there are good and bad days depending on the amount of stress, work and other factors during the day. For sure weekends are the best when I have occasion to spend time outside. I sleep well during the night and donít have to go to the toiled BUT it is still far from the shape in which I would like to see myself.

Symptoms which are still confusing me the most are: dryness and redness of the glans + burning sensation (moisturizing ointments help), little pain when urinating, pain in the legs + tingling, burning sensation of the skin to the foot, discomfort while sitting.
Previous Thursday my urologist did a prostate massage and Iím still waiting for the laboratory tests of prostatic secretions. Probably again E.Faecalis but who knows really.
Few things still bother me and I canít find clear answers anywhere. Namely, if I have bacterial prostatitis (bacteria in semen and foreskin ) then why even strong antibiotic had no effect in treating usually easy to treat urethritis and foreskin inflammation (good drug penetration). It is obvious that prostate penetration is a different story but it should at least help for a while. If targeted antibiotics showed no efficacy, maybe the cause is different (Iím treating wrong bacteria or bacteria is not a problem). On the other hand if I deal with muscular or other nonbacterial problem, then skin problems should not be present. Hormonal imbalance or toxins can also provide to prostatitis but can they also provide to skin inflammation? Rather not.



Sorry for so many questions but there are not so many people with witch I can talk about it so Iím just leaving these questions open and I would be grateful for any comments.

Take care and please forgive me my english language level
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  #1502  
Old 04-16-2014, 08:42 AM
sow&reap sow&reap is offline
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Default hello Europe guy

To date my most powerful weapons in the fight agianst this curse have been:

1. diet change: less sugar, flour, processed food; more vegetables, whole foods, lots of fibre

2. Massage and stretching: I think this increases blood flow and myofacial trigger points. It also increase activity in lymph nodes.

you may be caught up in the prostate catastrophe cycle:

1 we get an infection and start peeing all the time and worrying
2. due to peeing all the time and worrying we tense up our pelvic area
3. this tension causes us to need to pee more which causes more worry which causes more tension and so the cycle continues

Stretching has been huge in helping me to deal with my peeing all the time. google: pelvic splanchnic nerves. peeing all the time can be muscle related as much as infection related

BUT: in your case as is mine, we may be dealing with muscle tension issues on top of an underlying infection.

Sadly, so many of us on this site cannot seem to shake the infection part of our illness. Have you re-tested to make sure you have gotten rid of the bacterial infection? I think these new types of infection are so powerful that they get deep into the 'parts' and we cannot get rid of them...at least not easily.

I do know this, My right ball still aches from time to time. I still have to pee from time to time. My groin hurts from time to time BUT: stretching, massage, diet, ibuprofen all help. so does MSM and DMSO placed on scrotum

I know this: what keeps me going most of all is that I am not alone AND I will bet this. this helps. some days I dont even notice pain, other days I get discouraged BUT spontaneous remission is key. staying hopeful and open to new ideas is helpful. Just dont go chasing miracle cures to the point you lose your mind: then we can become too discouraged and hopeless.

lets keep figuring this stuff out together. have you tried the candida diet? It is miserable and I struggle to stick with it BUT I personally know of a few success stories. I have tried so hard to eat the candida diet way...but its so miserable

stay hopeful - any day now we will figure this out!!
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  #1503  
Old 04-18-2014, 01:12 AM
gran torino gran torino is offline
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Default hi S&R

Hi S&R, your earlier posts have influenced me to start complex solutions including healthy food. Due to the fact that I'm a vegetarian, it's easier for me to stick to the diet although it is not 100% anticandida one. Slowly I introduce some components of it like cold pressed linseed oil (the best source of OMEGA3 available) and other stuff which help my body to heal itself.

Many of my diet ideas can be found in a book of David Servan-Schreiber - a French physician and neuroscientist who at the age of 31 was diagnosed with brain tumor but he did not give up (even thou the prognosis was very bad). He started to seek for alternative solutions and benefits which human body can have from eating certain types of food. However he died of brain cancer in 2011, but after 20 years of normal living. The book is not very long but contains many examples of effective therapies and easily explains everything.

I recommend you his site for more information: just google his name or his book - "Anti Cancer".

He managed to control cancer with proper diet and changing his life style, so I will say we can fully recover from our problems by following his recommendations and doing all other stuff which makes our organisms stronger.
Changing life style means also calming down a little - confirmed by many of us on this thread. If you live in constant stress and anxiety, then you will not be able to use all your natural forces to fight infection or other problems.

This is my way. So far, quite effective and since everything started 7 months ago, my early symptoms have never returned.
Of course I'm still far from being recovered by I'm sure this is good direction.

I must add that I haven't resigned from antibiotics because still I have bacteria in semen and probably it is responsible for existing infection.
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  #1504  
Old 04-18-2014, 02:24 PM
sow&reap sow&reap is offline
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Default yes to anti-biotics

Hi

I agree, Yes to antibiotics. However, I believe that an appropriate diet is the long term solution in our cases. I think that for some reason we may have a bacteria / fungi resistant to antibiotics. Antibiotcis work but if not completely then we are actually just helping the bad stuff get stronger

I base my approaches on evidence based practices:

stretch massage to increase lymph node activity / blood flow is logical

diet high in natural anti-fungal properties.

less stress

antibiotics as needed

Check this out CRAZY:

http://www.goldjournal.net/article/0...576-V/abstract

Imagine losing a ball when you simply have a highly resistant strain of candida that can only be beat through diet....

TRUE STORY: My cousin got a big patch of ringworm on the back of her hand. she took lots of antibiotics to no avail. she cleaned it up completely through a crazy strict candida diet cleanse. I have tried but fail by day 9. she went for 120 days!!! - no sugar, no flour, no fun...BUT it may save a ball!

keep me posted
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  #1505  
Old 04-22-2014, 04:22 AM
gran torino gran torino is offline
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Default diet

yes I agree. Diet is extremely important in this case because it makes our defense system stronger against pathogenic bacteria etc. If the inflammation persists, it means that our body is still fighting with something so we should do whatever is possible to help our organism in winning the battle.

Vegetables are number one for sure, especialy while eaten fresh, not boiled. My plan for the nearest future is to buy an automatic juice extractor (for both: fruits and vegetables). This is the best source of vitamins and minerals - in comparison to supplements in pills, the absorption is much better.
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  #1506  
Old 04-22-2014, 07:41 PM
D Bergy D Bergy is offline
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I have two suggestions:

Get tested for Brucella.

Buy yourself a quality Rife machine so you can target and kill various pathogens without antibiotics. They work. I have been using one for many years.

Best regards.

Dan
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  #1507  
Old 05-07-2014, 11:31 PM
gran torino gran torino is offline
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Default treatmens

A small update from me. I'm still fighting with bacteria after positive cultures 2 weeks ago. The growth of E.Faecalis was significant so doctor prescribed a stronger abx = moxifloxacin. I will be taking it together with suplements wich enhance its activity.

Recently I was studying CPPS forum which is in 100% focused on abacterial prostatits and my suggestion for you friends is that, if you really do not have bacteria confirmed in your EPS or semen, just go there and follow their directions. There are many experienced men there which really know what to do in such case and huge part of them got better after some time of strict protocol based mainly on Headache in the pelvis book, suplements, diet etc.

What about you guys? Any progress or important changes in symptoms?
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  #1508  
Old 05-19-2014, 04:41 PM
its me!! IWBT its me!! IWBT is offline
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I seen a pelvic floor specialist last friday ,,He did a DRE and said my prostate felt normal and my pelvic floor was not tight he say's he thinks it's my bladder causing most my problems he gave some Oxybutynin 5mg once a day for my bladder and wants me to retrain my bladder by not voiding when I first get urge and he gave me Cialis 5mg one every other day for two week for my testicle pain..I must admit I feel slightly better already I hope it last..He did say that I have a very small hernia at the bottom of my abdomen he thinks it's too small for anyone to do surgery ...I'm not sure if I like the sound of that the bottom of my abdomen is where most of my pain resides not right on the hernia but all around that area
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  #1509  
Old 05-30-2014, 12:55 PM
its me!! IWBT its me!! IWBT is offline
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so is everybody just that much better or what??
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  #1510  
Old 06-07-2014, 09:44 AM
Johny1 Johny1 is offline
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Hello folks,

I havent been here for a while, for the reason being I am completely cured from the hell called nonbacterial prostatitis (chronic pelvic pain CPPS). I was suffering like many of you, for almost 2,5 years everyday. Depression, lack of energy, pain....a never ending cycle. Read through my posts if you need to know the details of what cured me. I will summarize it for you in bullet points below.
- a) DIET change - NO SUGARS, no ALCOHOL, no chilli, no COFFFE for 4/5 months.
(dont eat tomatoes too as they irritate the prostate gland)

- b) Colloidal silver - 10ppms (daily 40 - 60 ml under your tongue) for 14 days. Repeat when necessary. Silver water contains silver particles, that enter the blood stream and hence the prostate gland (many ATBs cant penetrate the prostate), therefore silver particles kill nano-bacteria in the prostate.

c) Cernilton (pollen extract) - 6 months. 6 tablets per day. Very helpful.
d) Quercetin extract in tablets (not so much useful, but helps too in the long run).
f) excercise - pelvic streches.

Folllow all of the above for 5 months and you shall reap results. I promise.

Keep calm and hopeful.
Johny
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  #1511  
Old 06-09-2014, 03:00 AM
gran torino gran torino is offline
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Default hi Johny

Hi Johny,

thanks for support. Basing on your previous posts I assume that we are both from the same country, or part of Europe at least.

I'm glad that you managed to heal your bacterial infection and then inflammation as well. Unfortunately I am still in phase I - fighting bacteria with antibiotics. without it probably I won't be able to cure myself completely.

I've implemented almost all your sugestions into my protocol and my prostatitis experience has been 1 year almost now.

regards
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  #1512  
Old 06-09-2014, 02:26 PM
its me!! IWBT its me!! IWBT is offline
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WHEN YOU SAY NO SUGARS DOES THIS INCLUDE FRUIT ...NO FRUITS??


AND WHAT PELVIC STRETCHES DID U DO??
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  #1513  
Old 06-09-2014, 11:39 PM
gran torino gran torino is offline
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I have not resigned from fruits. No sugar means no sweet coffee, tea, beverages, juices, sweet breads etc.

Concerning stretches: main set is from http://www.freewebs.com/trydent78/

Additionally jogging 20-40 min daily.

Also as I mentioned earlier all these things support antibiotics in my case (increasing blood flow).
I still have positive cultures in EPS and semen and all started 10 months ago. My symptoms are significantly less severe then in the beginning so I try not to give up. It takes time to cure this thing but I'm sure it is possible.
There are guys at my country's local prostatitis thread who were fighting for 1,2,3 or even 5 years and finally recovered so stay positive and try everything.

regards
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  #1514  
Old 06-10-2014, 02:41 PM
Johny1 Johny1 is offline
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Hello Gran Torino,

I have read through your post. Now I will suggest you use this colloidal silver product from a German company called Wala.

http://www.meinpharmaversand.de/arge...-a1750660.html

I used these Argentum capsules from Wala for almost 5 months (2 capsules a week). This colloidal silver product (highly concentrated colloidal silver) for sublingual or injection use, basically cured me from all of my symptoms. (pain, discomfort and fatigue were the main symptoms).

Keep up in your No Sugar, No Coffee, No alcohol, No chilli DIET.
I would also reccomend you find a bioresonance therapist using a Biorezonance Bicom 2000 device. You can book a session.

Keep up the strugle, its well worth the fight.

Johny
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  #1515  
Old 06-16-2014, 12:28 AM
gran torino gran torino is offline
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Hello Johny,

Thanks for advice. As I assume you bought 50 units (1ml each).

Why have you chosen exactly this manufacturer? Is it's efficacy higher than other products?

thanks and regards,

gran torino
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