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  #31  
Old 01-15-2014, 10:28 PM
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I agree with Revzen that cannabis can be very beneficial for epilepsy/seizures...http://freedomofmedicineanddiet.blog...-fund.html?m=1
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  #32  
Old 01-18-2014, 04:33 AM
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I am sure cannabis can be very beneficial and I have nothing against it -really- however, my experience of cannabis from my 20s is that it alters the mind and ultimately slows it down.

My experience of Magnesium sulphate (epsom salts) has been very beneficial and I would encourage anyone with epilepsy to try them (I use 1/4 teaspoon twice a day). Don't drink it during the night though-it keeps you awake.

My main aim in writing on this forum really is to share my experience with other people who are looking for alternative remedies, or are simply looking to lower their dose of AEDs. Anyone who has been on a high dosage of AEDs will know that the side effects can be horrific. My experience generally with neurologists is that they really aren't interested in anything natural, or even examining the root causes which is a shame. Which makes forums so important. I wouldn't have discovered epsom salts without this and over forums.

I have reduced my dose of sod valporate (very gradually) from 1500mg a day to just 300 mg a day. For anyone who is interested I also use natural progesterone cream towards the end of the month, 1000mg taurine, vit B complex and now 1/4 teaspoon of epsom salts twice a day. However, even if my epilepsy disappeared overnight I would continue with the mgso4 as it has had such a good effect on my concentration and general feeling of alertness. The only thing I would caution against is drinking it during the night, as it can actually keep you awake (in my experience) but even then I didn't feel dreadful, and surprising it didn't precipitate a full grand mal fit.

Last edited by llanarth; 01-18-2014 at 04:40 AM. Reason: to add information
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  #33  
Old 01-18-2014, 07:51 PM
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Quote:
Originally Posted by llanarth View Post
I am sure cannabis can be very beneficial and I have nothing against it -really- however, my experience of cannabis from my 20s is that it alters the mind and ultimately slows it down.

My experience of Magnesium sulphate (epsom salts) has been very beneficial and I would encourage anyone with epilepsy to try them (I use 1/4 teaspoon twice a day). Don't drink it during the night though-it keeps you awake.

My main aim in writing on this forum really is to share my experience with other people who are looking for alternative remedies, or are simply looking to lower their dose of AEDs. Anyone who has been on a high dosage of AEDs will know that the side effects can be horrific. My experience generally with neurologists is that they really aren't interested in anything natural, or even examining the root causes which is a shame. Which makes forums so important. I wouldn't have discovered epsom salts without this and over forums.

I have reduced my dose of sod valporate (very gradually) from 1500mg a day to just 300 mg a day. For anyone who is interested I also use natural progesterone cream towards the end of the month, 1000mg taurine, vit B complex and now 1/4 teaspoon of epsom salts twice a day. However, even if my epilepsy disappeared overnight I would continue with the mgso4 as it has had such a good effect on my concentration and general feeling of alertness. The only thing I would caution against is drinking it during the night, as it can actually keep you awake (in my experience) but even then I didn't feel dreadful, and surprising it didn't precipitate a full grand mal fit.
my wife is knocked out by a paracetemol! we all have different capabilities when taking whatever substance it is. I am on morphine for pain relief which can knock some people out, but not me!

its the (false) demonisation of the Sacred Herb which does annoy me - because its done for various reasons, and a big reason is certain industries care more for their profit margins than for the well being of the planet and the planet's occupants.
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  #34  
Old 01-19-2014, 02:38 AM
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If I ever am in that much pain, cannabis will be my first drug of choice. Finding what works is important, and none of the neurologists or anyone else truly understand the workings of the brain or even how these drugs work in some cases. In fact if the specialists actually listened more to their patients they would certainly start to learn more about the complexity of the condition. Yes, some do, but the number of times my views have been dismissed have been infinitely more than the times I've been really listened to.

And I'm with you 100% about the drug companies. In fact, don't start me on drug companies...I'm just so happy that the internet now exists so I can do my own research.

I seem to have grown very sensitive to any drugs-this definitely was not the case 20 years ago. Even a glass of wine has the effect of knocking me out!

On demonisation-well that's a fascinating subject in itself, and on reflection anything which mankind enjoys has probably been demonised! Food, alcohol, sex, riches, people....I'm afraid it's human nature to look for something to demonise -shame more energy isn't put into examining the benefits. But I agree that cannabis has more than its fair share of demonisation and because of this, its medicinal qualities has been overlooked or worse, dismissed. And nothing with medicinal benefits should be overlooked-this is certainly a crime.

Have a good day.
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  #35  
Old 01-19-2014, 09:59 AM
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It's legal medicinally and for recreation now where I live, and many people have moved here for the cannabis to help with their medical conditions, like mothers of children suffering with cancer and the harsh standard chemo/radiation treatments. Some have just made the trip to purchase a small amount to relieve their conditions. It should be legal all over, IMO. A lot less dangerous than the pharmaceutical drugs with the laundry list of side effects. But the powers that be want to make all the money, and will try to ban the marijuana, hemp, etc.
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  #36  
Old 01-19-2014, 11:39 AM
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It should certainly be legal for medicinal purposes, IMO it's just ridiculous what people have to go through. And I would certainly try cannabis rather than be on the 1500mg of sodium valporate which plunged me into a horrible depression and very nearly returned me to hospital. It does exceedingly nasty things to your liver, not to mention your appendix at that dosage (I'm around 55kg). The specialist's answer was to put me on anti depressants! Although I have to say that same specialist was quite open minded about me reducing the meds.

I generally agree that 9 times out of 10 there are much gentler things available which do the same or a better job without the side effects. Or at the very least can be combined with a significantly lower dose of the 'nastier' drug. There should be much greater of availability of results where people have successfully used alternative remedies be it mineral or with alternative medicines such as cannabis.

In modern life there is always additional complexity. Many people need to work and need their condition (say it is epilepsy) controlled now-they have bills to pay, children to support. I at least have had the luxury of defining my hours of work so I have had no early morning hours (I have waking epilepsy). This has given me the luxury to experiment and to try different things. Though I'll probably never be rich!
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Old 02-01-2014, 08:22 PM
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I would like to know how this has worked for people who have epilepsy similar to my own. I have grand mal seizures with a non-coherent after spell that lasts maybe 20-40 minutes, no previous head trauma, nothing on imaging at hospital or any reaction to pulsing lights. Once my neurologist suggested it could be the way my "brain" deals with stress and other neurologists laughed at the notion. (I have had many odd and uncaring neurologists) However within the 12 years of having epilepsy starting at puberty, I have noticed when I do have an "episode" it tends to be the day of-before-after or closely to my menstrual cycle leading me to believe it's hormonal (leading back to the stress thing). They almost always occur in the morning within 3 hours of waking up. Currently I take 500 mg twice daily of the generic keppra. Any answers or thoughts to hormones and this remedy?

I will definitely keep a stash for emergencies either way!
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  #38  
Old 02-02-2014, 04:38 AM
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Ian, I am 40 years old but my epilepsy also started when my hormones kicked in. Stress and epilepsy are known to be linked (at least I have read numerous books which mention this link) so the reaction of the neurologists surprises me.

However, progesterone is a known anti convulsant and Estrogen a known trigger for epilepsy. Proof of this was when I was pregnant I gave up my AEDs- progesterone as you know rises through the roof when you are pregnant-no seizures. My consultant was absolutely furious. Actually I managed to keep of AEDs for 10 years but as I've grown older I think my progesterone has naturally lowered and my epilepsy has returned. I currently take 500mg valporate a day which is a very low dose, but I do have an occasional seizure around my menstrual cycle which I am trying to control now through various means-to soon to measure success yet. But probably magnesium salts won't be the only supplement that you need.
As mine happens on waking I am now experimenting with a variety of things (magnesium sulphate, taurine, B complex and breathing exercises http://www.youtube.com/watch?v=JhK549uGvhc buteyko-watch here if you're interested.) I have also read the vitamin D can be helpful.
Don't let neurologists put you off. Often epilepsy isn't their specialty and they may not be interested in this area. I stopped going to neurologists to be honest because so many of them were just not interested in you as a person, and some have such blinkered perceptions it really put me off. Anyway, you may have to try several. I did go on he progesterone coil which controlled my seizures for a time, and then they broke through again, although this is not always healthy method of control either.

Oh the cannabis! I'm not with it today. No, personally I haven't tried it. It might be worth trying but it might have an detrimental effect on your memory. I would try the breathing first-it's free and it's relaxing. I'm going to see if the breathing works first. Personally I would save up your money for biofeedback
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  #39  
Old 08-30-2014, 08:27 PM
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Default Warmth and Frankincense

My son (age 24) has tried every natural therapy for his daily attacks of epilepsy. We have not gone down the drug path (yet) although he was on Kepra for a while (some months). We have used supplements, herbs, homeopathics, cranial sacral work, acupuncture, Ayurvedic diet and medicines. His epilepsy in the last 6 months has been much worse. He has mainly seizures of a night time and he was having 1 to 5 per night, some gran mal (1/3 to 1/2), some less severe. Then I realized that his body was cold. We piled on the donas, put loads of blankets underneath his bottom sheet, got him to sleep in a balaclava and wear a beanie and more clothes and wool jumpers during the day. The results were an instant, a 90% reduction in the seizures. I have also been reading about frankincense and I ordered some and we have been putting it on his feet for the last two nights. It has been a month since keeping him extra warm and.... no grand mals in that time. Since using the oil (only a couple of days)..no seizures for the last 3 days. This is very exciting and I will keep you posted. We still maintain an excellent diet.
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Old 09-02-2014, 03:55 PM
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Default antibiotics beware.

I have found something else that does definitely work. That's brainmaster. You control your brainwaves training them to natural suppress seizure activity.

Another thing to be aware of is amoxicillin. It sent my brain completely bananas and I had 3 fits in a row. I've finished the antibiotics now, and I'm fine but do bear in mind this can have bad effects on your brain. While using brainmaster, my theta activity measured 25 + instead of the usual 8-12 range. It has even been known to give people who are non epileptic seizures.
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  #41  
Old 09-02-2014, 06:18 PM
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Default Warmth and Frankincense update

It is now 6 days of our regime of extra warmth (including wearing a balaclava to bed and extra donas) and using frankincense essential oil on the big toe, soles of the feet and back of the neck. NO SEIZURES. Not bad after having 1 to 5 nightly many of those being grand mals. Nothing else has changed. My son is beginning to come out of the fog!
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  #42  
Old 09-03-2014, 12:38 AM
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That's fantastic and really interesting to read about. Cross fingers my daughter won't suffer from epilepsy but I really won't know until she hits puberty in about a year's time.

I hope the grand mal free period continues. The drugs they give you are dreadful. I've managed to cut my dosage down to 500mg once a day. With any luck I may be able to reduce that again. At least the dosage allows me to be pretty clear headed.
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Old 09-03-2014, 01:02 AM
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Default Hope it works for you too

Glad to hear that you have been able to cut down on the drugs. Most people don't know what an impact epilepsy has on lives. Try the frankincense, who knows it might help you too. I bought mine from an essential oil supplier that I found on line. Good luck!
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  #44  
Old 01-22-2017, 07:27 PM
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Default NATURAL CURE FOR EPILEPSY, MY TESTIMONY!

One of my children went through epilepsy for years. I couldnít find a cure with western anti-seizure medication. My child solution came, when I went to the internet for a personal search for cure. I read a testimony of a mother who went through the same problem, but his child was totally cured by Herbal Medication of Dr. Mohan. I contacted the doctor, and today my child is totally cured and free from seizures and jerks caused by epilepsy. For those whose loved one might be going through the same problem, you may contact Dr. Mohan through this email drajaymohanbose@gmail.com. You will find a cure just like I did for my child.
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  #45  
Old 02-20-2017, 03:39 AM
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Default hi all

hi all
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