Haven't posted for a while but will give update on daughter. The thyroid doctor says she is getting too much thyroid meds and so she stopped. Went in today for check up with regular doctor and he was upset and found an endocrinogist (thyroid specialist) in Wichita at the Galichia heart hospital for next Tuesday. He also finally did some blood work which I thought he should be doing all along.
This first thyroid doctor said her Vit D level was only 18 though and so she started taking omega 3 with D3. We should be able to find out if this has helped to raise that level. The doctor said it should be 50-75.
She thinks things are finally starting to heal and level out as she says she would get tired and then it would go away but now she doesn't get tired as much.
I am not as concerned as much about her not having a thyroid but that she has no parathyroid glands either. Sure wish people could take their own blood tests at home instead of waiting a month on them.